Innovations in Care

MDA Engage Community Webinars

Through the MDA Engage Community Webinars, families can learn about topic areas important to the neuromuscular community. Each online webinar will feature experts in the field along with opportunities to ask questions of presenters.

Upcoming 2022 Events

MDA Engage: Updates in Research and Treatments in Pompe Disease
April 5, 2022 1:00pm - 2:00pm ET
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MDA Engage: ALS-Parenting at Challenging Times
April 26, 2022 2:00pm - 3:00pm ET
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MDA Engage: Nutrition and Neuromuscular disease  
May 19, 2022 4:00pm - 5:15pm ET
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MDA Engage: Durable Medical Equipment (DME) Series Part 1-Respiratory Equipment
June 24, 2022 1:00pm - 2:30pm ET
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MDA Engage: Updates in research and treatments in Myotonic Dystrophy
July 12, 2022 3:00pm - 4:00pm ET
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Past 2021 Events

MDA Engage: Facioscapulohumeral Muscular Dystrophy (FSHD)
October 21, 2021 3:00-4:00pm EST
Watch Recorded Seminar Here

MDA Engage: Newborn Screening
Recorded: October 6, 2021
Watch Recorded Seminar Here

MDA Engage: Your future, your family and neuromuscular disease
Recorded: September 14, 2021
Watch Recorded Seminar Here

MDA Engage: Medical Equipment and Assistive Devices for Neuromuscular Disease - Part 2
Recorded: August 10, 2021
Watch Recorded Seminar Here

MDA Engage: PT, Exercise and Pompe Disease
Recorded: July 28, 2021
Watch Recorded webinar

MDA Engage: Mental Health and Amyotrophic Lateral Sclerosis (ALS)
Recorded: July 27, 2021
Watch recorded webinar

MDA Engage: Medical Equipment and Assistive Devices for Neuromuscular Disease – Part 1
Recorded: July 20, 2021
Watch recorded webinar

MDA Engage: Introduction to the Diagnostic Odyssey of Neuromuscular Disease
Recorded: July 15, 2021
Watch recorded webinar

MDA Engage: Polymyositis and Dermatomyositis
Recorded: June 30, 2021
Watch recorded webinar

2021 MDA Engage: Mental Health and Limb-Girdle Muscular Dystrophy
Recorded: June 23, 2021
On-Demand Event
Watch recorded webinar

MDA Engage: Creating strong connections and relationships
Recorded: June 10, 2021
Watch recorded webinar

MDA Engage: Diagnostic Odyssey of Pompe Disease
Recorded: June 7, 2021
Watch recorded webinar

MDA Engage: Gene Therapy and Duchenne Muscular Dystrophy
Recorded: May 20, 2021
Watch recorded webinar

MDA Engage: Virtual Medical Visits: A 2021 Update
May 13, 2021 4:00pm - 5:00pm ET
Watch recorded webinar

MDA Engage: Preparing for the future - Finding the best college and career for you
May 5, 2021 3:00pm - 4:30pm ET
Watch recorded webinar

MDA Engage: Mental Health and Duchenne Muscular Dystrophy
Recorded: April 8, 2021
Watch recorded webinar

MDA Engage: Maintaining Breathing Function with a Neuromuscular Disease
March 30, 2021 3:00pm - 4:00pm ET
Watch recorded webinar

MDA Engage: Gene Therapy and Neuromuscular Disease
March 23, 2021 4:00pm - 5:00pm ET
Watch recorded webinar

MDA Engage: Mental Health Webinar
January 28, 2021 3:00 - 4:00pm ET
Watch recorded webinar

2020 MDA Engage Community Webinars