Innovations in Care
We provide programs and services that transform the lives of people affected by neuromuscular disease.
Updates in Research and Care: Finding the Right Care
September 25th, 2025
3:00-4:30pm ET
Live, Virtual Webinar
Join us for a beneficial and informative webinar focused on finding the right multidisciplinary care for your neuromuscular disease. Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support on neuromuscular treatment.
What We’ll Cover:
- The importance of multidisciplinary care for neuromuscular diseases and the role of specialists in treatment and management.
- Guidance on how to find and access neuromuscular care centers, understand insurance considerations, and advocate for the right care.
- Practical strategies to communicate effectively with healthcare providers and make informed decisions about treatment options.
- Live Q&A with the presenter and a patient panel ft. MDA Ambassadors who can give first-hand knowledge and support ideas for collaborative healthcare management.
Meet Our Presenter:
Lora Clawson, MSN CRNP, is the is the Director of ALS Clinical Services at Johns Hopkins Medicine. She coordinates ALS clinical care management, clinical research studies, and community fundraising for ALS clinical services at Johns Hopkins.
Not available to join live on September 25th? Register to receive an email when the webinar is available to view on-demand.
If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.
Johns Hopkins Medicine
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