About Us

We're here to transform the lives of people affected by neuromuscular disease.

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related muscle-debilitating diseases impact the families we serve is critical for educating people about the urgent need for action and support. 

For Media Inquires 

Mary Fiance
Director of Public Relations and Communications
646-992-2908
press@mdausa.org

Nancy Intrator
Director of Communications, Healthcare Partnerships
646-992-2907
press@mdausa.org

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related muscle-debilitating diseaes. Call our public relations department at 520-529-5305 or email press@mdausa.org for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases

  • Burn Boot Camp Raising Funds for its Second Annual National "Be Their Muscle" Event

    Burn Boot Camp Partners with the Muscular Dystrophy Association (MDA) for the Second Year, Holding Benefit Camps Nationwide Saturday, July 20th, in an Effort to Top Last Year’s Donations of $170,000 to Support Families Living With Muscular Dystrophy and Related Diseases.

    CHARLOTTE, N.C. (PRWEB) 

  • MDA Awards Venture Philanthropy Funding to Dr. Rachelle Crosbie to Develop a Novel Membrane-Stabilizing Drug for Duchenne Muscular Dystrophy

    NEW YORK, July 16, 2019 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) has awarded MDA Venture Philanthropy (MVP) funding totaling $389,000 over two years to Rachelle H. Crosbie, PhD, professor and chair of Integrative Biology and Physiology at the University of California, Los Angeles. The award will support the development of a small molecule drug that increases expression of sarcospan, a protein that may help to prevent the muscle damage that occurs in Duchenne muscular dystrophy (DMD). Currently, there are only two FDA-approved therapies to treat DMD.

  • Bennett Foundation donates $500,000 to Muscular Dystrophy Association in honor of the late TV Pioneer Bob Bennett

    Funds will Support MDA Summer Camp Program in Orange, California Giving Kids with Neuromuscular Diseases Their Time to Shine

    LOS ANGELES, July 9, 2019 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) announced today that the Bennett Foundation is graciously donating $500,000 for the Los Angeles area MDA Summer Camp in Orange, California, which will be named the MDA Robert & Marjie Bennett Foundation Summer Camp.