Press Room

Fighting every day to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related muscle-debilitating diseases impact the families we serve is critical for educating people about the urgent need for action and support. 

For Media Inquires 

Roxan Olivas
Vice President, Public Relations and Community Programs
520-529-5305
rolivas@mdausa.org

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related muscle-debilitating diseaes. Call our public relations department at 520-529-5305 or email publicrelations@mdausa.org for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases

  • MDA Awards $2.6 Million in New Research Grants

    Investment funds critical infrastructure, feeds a rapidly expanding therapy development pipeline and encourages researchers and other stakeholders to commit to the neuromuscular field

  • Target ALS Launches Biomarker Collaboration with Academic, Industry, and Philanthropic Partners

    Unprecedented Coalition Aims to Accelerate Testing of New ALS Therapies

    New York City—April 19, 2018 - Target ALS announces the launch of a collaboration that connects Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) Consortium, the Muscular Dystrophy Association, the ALS Association and 10 pharmaceutical companies to validate the most promising ALS biomarker candidates, and immediately make all results broadly available to the worldwide ALS research community.

  • MDA Names Michael J. Kennedy as Chief Financial Officer

    CHICAGO, March 30, 2018 — After a comprehensive nationwide search, the Muscular Dystrophy Association has announced the appointment of Michael Kennedy as Executive Vice President and Chief Financial Officer, effective March 19, 2018. Kennedy succeeds Julie Faber, who left MDA earlier this year.