About Us

We're here to transform the lives of people affected by neuromuscular disease.

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related muscle-debilitating diseases impact the families we serve is critical for educating people about the urgent need for action and support. 

For Media Inquires 

Mary Fiance
Director of Public Relations and Communications
646-992-2908
press@mdausa.org

Nancy Intrator
Director of Communications, Healthcare Partnerships
646-992-2907
press@mdausa.org

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related muscle-debilitating diseaes. Call our public relations department at 520-529-5305 or email press@mdausa.org for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases

  • MDA Awards Venture Philanthropy Grant to AcuraStem to Develop Novel Treatment for ALS

    NEW YORK, Jan. 15, 2019 /PRNewswire/ -- The Muscular Dystrophy Association has awarded an MDA Venture Philanthropy (MVP) grant totaling $300,000 over two years to AcuraStem Incorporated to support preclinical development of a novel small molecule therapeutic for amyotrophic lateral sclerosis (ALS). The treatment has the potential to be transformative for a broad range of ALS patients. MVP grants are awarded to researchers developing therapeutics for neuromuscular diseases to help lower the barriers and bridge the high-risk stages of drug development.

  • Jiffy Lube® Annual MUSCLE UP!® Campaign Benefiting Muscular Dystrophy Association hits the $6 million mark

    CHICAGO, Nov. 5, 2018 /PRNewswire/ -- Today, the Muscular Dystrophy Association (MDA) announced that Jiffy Lube service centers have raised more than $600,000 nationwide during its annual MUSCLE UP!® campaign, which ran throughout the month of August to support MDA. This year's campaign brings the total to an impressive $6 million raised for MDA over the course of the seven-year partnership between the two organizations.

  • Intersection between big data and therapeutic pipeline in neuromuscular disease will be life-changing for 250,000 patients and caregivers

    NEW YORK, Oct. 30, 2018 /PRNewswire/ -- A new report funded by the Muscular Dystrophy Association (MDA) and released by the IQVIA Institute for Human Data Science indicates that genetic testing and breakthrough therapies will transform the diagnosis and care of neuromuscular disease within the next decade. The report, "Understanding Neuromuscular Disease Care," highlights current gaps in care and opportunities to optimize care and accelerate the emergence of new therapies.