Welcome to the MDA Press Room
Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.
For Media Inquires
Mary E. Fiance
Vice President, Public Relations
Director of Corporate Communications
MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseases. Email firstname.lastname@example.org for assistance.
Expert Spokespeople - Understanding Neuromuscular Diseases: What You Need To Know
MDA has incredibly knowledgeable experts and leaders on topics in clinical and scientific research, multi-disciplinary medical care, and advocacy for access for people living with disabilities. Learn more about interview subjects who are leading experts on muscular dystrophy, ALS and related neuromuscular diseases, and discussion on inclusion and access for people living with disabilities. Contact email@example.com for interviews.
Guidelines for Reporting & Writing about People with Disabilities
- Syracuse University Disability Cultural Center
- National Center on Disability Journalism at Arizona State University Disability Language Style Guide
Recent Press Releases
May 17, 2022
May 16, 2022Event to be held in New York City on June 9 to benefit MDA's ALS research.
May 16, 2022A portion of proceeds will be donated to the Muscular Dystrophy Association