Welcome to the MDA Press Room
Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.
For Media Inquires
Director of Public Relations and Communications
Director of Corporate Communications
MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseases. Email firstname.lastname@example.org for assistance.
Guidelines for Reporting & Writing about People with Disabilities
- Syracuse University Disability Cultural Center
- National Center on Disability Journalism at Arizona State University Disability Language Style Guide
Recent Press Releases
Apr 15, 2021Featuring MDA Medical Consultant Dr. Matthew B. Harms, Associate Professor Neurology, Columbia University & Dr. Sabrina Paganoni, Co-Director, MGH Neurological Clinical Research Institute (NCRI) on May 6, 2021 at 3pm ET
Apr 13, 2021Where safe, IAFF affiliates and their members resume in-person MDA Fill the Boot events nationwide to raise lifesaving funds for scientific and clinical research and care for over 300,000 families living with muscular dystrophy, ALS, and related neuromusc
Apr 6, 2021Fashion entrepreneur and neuromuscular disease advocate, Keisha Greaves from Cambridge, MA, joins current MDA National Ambassador Ethan LyBrand to share her story and raise awareness.