About Us

We're here to transform the lives of people affected by neuromuscular disease.

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related muscle-debilitating diseases impact the families we serve is critical for educating people about the urgent need for action and support. 

For Media Inquires 

Mary Fiance
Director of Public Relations and Communications
646-992-2908
press@mdausa.org

Nancy Intrator
Director of Communications, Healthcare Partnerships
646-992-2907
press@mdausa.org

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related muscle-debilitating diseaes. Call our public relations department at 520-529-5305 or email press@mdausa.org for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases

  • Updated Duchenne Guide for Families

    Logos of the Muscular Dystrophy Association, Parent Project Muscular Dystrophy, Treat-NMD, and World Duchenne Organization

    The new resource will be released on World Duchenne Awareness Day, September 7, 2018

  • Numotion Partners with The Sing Me a Story Foundation to Bring Muscular Dystrophy Association Hero's Stories to Life

    BRENTWOOD, Tenn., Sept. 6, 2018 /PRNewswire/ -- Numotion has partnered with The Sing Me a Story Foundation to share unique stories of kids served by the Muscular Dystrophy Association (MDA). The MDA has a deep commitment to transform the lives of adults, children and families affected by neuromuscular diseases (muscular dystrophy, ALS and other related diseases). Sing Me a Story, a non-profit 501(c)(3) organization based in Nashville, TN, combines the imaginations of children with the talents of songwriters to create wonderful stories and songs

  • Casey's General Stores Team Up with the Muscular Dystrophy Association to Help Kids and Adults #LiveUnlimited

    CHICAGO, Aug. 31, 2018 /PRNewswire/ -- Casey's General Stores and its customers in 16 states are teaming up throughout September to support the Muscular Dystrophy Association (MDA), helping kids and adults living with muscular dystrophy, ALS and other related life-threatening diseases.