Welcome to the MDA Press Room
Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.
For Media Inquires
Director of Public Relations and Communications
Director of Corporate Communications
MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseases. Email firstname.lastname@example.org for assistance.
Guidelines for Reporting & Writing about People with Disabilities
- Syracuse University Disability Cultural Center
- National Center on Disability Journalism at Arizona State University Disability Language Style Guide
Recent Press Releases
Sep 15, 2021
Sep 15, 2021Virtual Patient Perspective Webinar featuring Cleveland Clinic’s Adrienne Boissy, MD, Walter Panzirer, Helmsley Charitable Trust, and Patient Advocacy Leaders - September 24
Aug 30, 2021