Welcome to the MDA Press Room
Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.
For Media Inquires
Director of Public Relations and Communications
Director of Corporate Communications
MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseases. Email firstname.lastname@example.org for assistance.
Guidelines for Reporting & Writing about People with Disabilities
- Syracuse University Disability Cultural Center
- National Center on Disability Journalism at Arizona State University Disability Language Style Guide
Recent Press Releases
Jun 16, 2021
Jun 15, 2021Campaign drives awareness to fund critical research and care for over 300,000 families in the US living with muscular dystrophy, ALS, and related neuromuscular diseases, including the Hines family.
Jun 15, 2021Featuring Dr. Jeffrey Rosenbluth, University of Utah Health Science Center & TRAILS program, Laurie Browne, Ph.D, American Camp Association, Amy Shinneman, MDA Ambassador/Advocate on June 30, 2021, at 3pm ET