MDA For Strength Independence & Life

About MDA

Fighting every day to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related muscle-debilitating diseases impact the families we serve is critical for educating people about the urgent need for action and support. 

For Media Inquires 

Roxan Olivas
Vice President, Public Relations and Community Programs
(520) 529-5305

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related muscle-debilitating diseaes. Call our public relations department at (520) 529-5317 or email for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases

  • MDA Celebrates FDA Approval of Spinraza for Treatment of Spinal Muscular Atrophy

    ‘Antisense’ drug expected to change — and save — lives

    CHICAGO, December 23, 2016— The Muscular Dystrophy Association today celebrated news of the U.S. Food and Drug Administration’s decision to grant approval for nusinersen (brand name Spinraza), the first disease-modifying drug to treat the most common genetic cause of death in infants.

  • MDA Appoints Karen Lewis Alexander as Chief Revenue Officer

    CHICAGO, Dec. 1, 2016 – After a comprehensive, nationwide search, MDA is pleased to announce the appointment of Karen Lewis Alexander as its new Executive Vice President and Chief Revenue Officer. Alexander will join MDA in this newly created leadership role as a member of its Executive Staff Team beginning Tuesday, January 17.

  • Former MDA President and Chairman Bob Bennett, Broadcast and MDA Love Network Pioneer

    CHICAGO, Dec.1, 2016 - In response to the passing of legendary broadcast executive Robert M. Bennett, former president, chairman and emeritus member of the Muscular Dystrophy Association Board of Directors, the extended MDA family today mourns his loss. Bob was 89 and lived in Newport Beach, California, with his wife of 66 years Marjie.

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