MDA Community Groups

You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an MDA Community Group. Community Groups are supportive groups that provide a safe place to gather resources, interact meaningfully with others and exchange valuable information with others in the neuromuscular disease community.

MDA offers three different Community Groups for you to choose from including:

  • Newly Diagnosed Groups
    • Pediatric Group for those under the age of 18 and diagnosed within the last year
    • Adult Group for those over the age of 18 and diagnosed within the last year
  • ALS group for those living with ALS and their family members
  • Gene Therapy group for those eligible for currently approved therapies

MDA membership is required to attend a Community Group, and Community Groups will only be offered in English at this time.

Contact Us

MDA Resource staff are available Monday through Friday 9 am to 5 pm CT:

By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email: