For Strength, Independence and Life

At the Muscular Dystrophy Association, we believe in living life, unlimited.

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The freedom to walk, to talk, to run and play. To laugh, to hug. To eat. To breathe.

Each day these freedoms are taken away from kids and adults with muscular dystrophy, ALS and related diseases that weaken muscle strength and limit mobility. Together we can change that.

About Neuromuscular Diseases

What We Do

Founded by a group of families in 1950, families are at the heart of everything we do today.

  • Cure

    Finding research breakthroughs across diseases to accelerate treatments & cures

    Explore the Research
  • Care

    Caring for kids and adults from day one at MDA Care Centers

    See Our Services
  • Champion

    Empowering families with services and support in hometowns across America

    Get Involved
  • MDA is supporting
    180 research
    projects worldwide
  • Kids and adults make
    nearly 50,000
    visits to MDA Care Centers each year
  • More than 3,800
    kids receive their “best week of the year” at MDA Summer Camp, free of charge
  • You’ve helped make
    this progress and more possible
    See the Impact

Volunteer with Us

Whether you’re looking to volunteer at a camp or a local office, organize a group of friends to fundraise, run a marathon, or advocate for the cause, the ways to get involved are endless.

Ways to Get Involved

Latest Happenings & Stories

  • An image representation of DNA

    SMA Added to National List of Disorders to Screen for at Birth

    After significant collaborative work among many stakeholders in the spinal muscular atrophy (SMA) community, we are pleased to share that the Secretary of Health and Human Services, Dr. Alex Azar, has accepted the recommendation to add SMA to the Recommended Uniform Screening Panel for newborns. This is a landmark decision for the SMA community.

    Read More
  • Another image representation of DNA

    Sarepta Reports Positive Preliminary Findings in DMD Gene Therapy Trial

    This week, Sarepta Therapeutics announced encouraging preliminary results from a phase 1/2a gene therapy trial designed to assess the investigational drug AAVrh74.MHCK7.micro-Dystrophin in boys with Duchenne muscular dystrophy (DMD). After 90 days in the trial, the first three participants all showed robust expression of micro-dystrophin — a shortened version of the protein that is absent in the muscle of those with DMD.

    Read More
  • A picture of MDA National Ambassador Justin Moy, with family and friends

    From Graduation Onward: MDA National Ambassador Justin Moy Looks Ahead

    MDA National Ambassador Justin aspires to become a researcher and is preparing now to head to college and major in bioinformatics and computational biology. Check out the story he wrote to share a few thoughts on his next exciting chapter.

    Read More
  • A formal picture of Karen Toennis with her husband and child.

    From Caregiver to Clinic Coordinator: Karen Toennis’ Journey Alongside ALS

    In the 25 years since her husband’s diagnosis, Karen has seen a lot of progress on the ALS front. She is optimistic about where research is headed but still remembers what it was like for Mike to receive his life-changing news...

    Read More
Visit Our Blog

Recent News

  • MDA Funds Development of a Critical Biomarker for Charcot Marie Tooth Disease

    $1 million investment aims to accelerate drug development and speed clinical trials to test candidate therapies for CMT

    Read More
  • MDA Funds Expansion of Facioscapulohumeral Muscular Dystrophy Clinical Research Network

    $1.2 million investment will support seven medical centers that specialize in FSHD research and clinical care

    Read More
  • Sailormen Inc. Popeyes Raises More Than $1,000,000 for MDA

    The annual “Appetite for a Cure” program and golf tournament will help fund vital research and care for kids and adults affected by neuromuscular disease.

    Read More
  • MDA Names Michael J. Kennedy as Chief Financial Officer

    After a comprehensive nationwide search, the Muscular Dystrophy Association has announced the appointment of Michael Kennedy as Executive Vice President and Chief Financial Officer.

    Read More
See Recent News

Meet Our Partners

These friends are helping MDA families live longer, grow stronger, and defy limits.

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Meet Them All

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MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.

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