Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Outside Organization Programs & Information

As part of our support to the neuromuscular disease community, MDA posts information provided by outside companies and organizations that are educational or research in nature.

The information, programs and resources listed below are not developed,  sponsored, funded or endorsed by MDA.  The companies and organizations posting below are responsible for all content and information provided. Any questions or queries, please email us at ResourceCenter@mdausa.org. Posting may not be for fundraising or commercial purposes.

Muscular Dystrophy Caregiver Roundtable

A Company will be hosting muscular dystrophy caregiver roundtable discussions in select cities throughout the US. This company is very interested in gaining your participation in the roundtable discussions, which will also serve as an opportunity to connect with other caregivers in your area. Anything you share during the discussion will be confidential and will help this company understand the caregiver experience in order to best support patients and caregivers across the country. You will be compensated for your time.

The discussions will take place from January through February, in 10 of the following cities (depending on caregiver availability): Los Angeles, CA; San Francisco, CA; Denver, CO; Washington, D.C.; Miami, FL; Orlando, FL; Atlanta, GA; Chicago, IL; Boston, MA; New York, NY; and Rochester, NY; Cincinnati, OH; Columbus, OH; Philadelphia, PA; Houston, TX; and Dallas, TX.

If you are interested in participating, we kindly request that you visit https://www.surveymonkey.com/r/MD112018 or contact the recruitment specialist, Joan Roosmann, at jroosmann@marketplusllc.com for more information.

Take on Thymidine Kinase 2 deficiency (TK2d)

Whether you're living with an MDS, have been diagnosed with TK2d or are a parent, caregiver, or healthcare professional (HCP) who wants to learn more about MDS and TK2d, visit www.tk2d.com for more information. We can all take on TK2d together.

Gene Therapy Patient Education

The American Society of Gene and Cell Therapy has a variety of educational resources available on their website. Visit https://www.asgct.org/education to learn more about the basics of gene therapy, the clinical trial process and the potential of gene therapy for specific diseases including SMA and MTM.