Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Outside Organization Programs & Information

As part of our support to the neuromuscular disease community, MDA posts information provided by outside companies and organizations that are educational or research in nature.

The information, programs and resources listed below are not developed,  sponsored, funded or endorsed by MDA.  The companies and organizations posting below are responsible for all content and information provided. Any questions or queries, please email us at ResourceCenter@mdausa.org. Posting may not be for fundraising or commercial purposes.

The second International Conference on Imaging in Neuromuscular Diseases, MYO-MRI

The second International Conference on Imaging in Neuromuscular Diseases, MYO-MRI (https://conference.myo-mri.eu) will be held in Berlin from Sunday 17th to Tuesday 19th of November 2019. The conference program will feature internationally-recognized keynote speakers highlighting developments and advances in all aspects of neuromuscular imaging. At least 200 participants from the neuromuscular field are expected to attend. For any additional questions please feel free to get in touch with helen.sutherland@newcastle.ac.uk

Duchenne Muscular Dystrophy: Psychosocial Care and Transitions of Care Across the Lifespan
Tuesday, June 25, 2019 | 12-1pm CT

This webinar will highlight the updated care considerations and emerging therapies regarding the care and management of individuals with Duchenne Muscular Dystrophy (DMD) as they relate to psychosocial care and transitions of care across the lifespan. Participants will better be able to identify and address related issues affecting individuals with DMD and the role of primary care providers and these sub-specialty providers in achieving effective care-coordination for patients with DMD. This learning activity is eligible for AMA PRA Category 1 Credit™ and Maintenance of Certification (MOC) Part 2. The webinar is free but prior registration is required. For more information, contact Nkem Chineme at nchineme@aap.org.

No Charge Genetic Testing for Patients Suspected of Having SMA

The SMA Identified Program offers no charge genetic testing for patients suspected of having or clinically diagnosed with SMA.  The link to the program is below:
https://www.invitae.com/en/sma-identified

Take on Thymidine Kinase 2 deficiency (TK2d)

Whether you're living with an MDS, have been diagnosed with TK2d or are a parent, caregiver, or healthcare professional (HCP) who wants to learn more about MDS and TK2d, visit www.tk2d.com for more information. We can all take on TK2d together.

Gene Therapy Patient Education

The American Society of Gene and Cell Therapy has a variety of educational resources available on their website. Visit https://www.asgct.org/education to learn more about the basics of gene therapy, the clinical trial process and the potential of gene therapy for specific diseases including SMA and MTM.