Innovations in Care
Outside Organization Programs & Information
As part of our support to the neuromuscular disease community, MDA posts information provided by outside companies and organizations that are educational or research in nature.
The information, programs and resources listed below are not developed, sponsored, funded or endorsed by MDA. The companies and organizations posting below are responsible for all content and information provided. Any questions or queries, please email us at ResourceCenter@mdausa.org. Posting may not be for fundraising or commercial purposes.
Free Regional Educational Program on Duchenne Muscular Dystrophy!
If you are in the Indianapolis area and want to connect with others in the Duchenne community, the following free program will be held on February 22, 2020.
“Understanding and Managing Behavior in DMD” presented by Natalie Truba, Ph.D., Clinical Psychologist, Nationwide Children’s Hospital
Date & Location
February 22, 2020
11:00am – Registration/Coffee and Conversations with the Duchenne Community
12:00pm – Lunch and Program
District Tap – Northside 3720 East 82nd Street Indianapolis, IN 46240
Please email Malisa Rust at email@example.com
No Charge Genetic Testing for Patients Suspected of Having SMA
The SMA Identified Program offers no charge genetic testing for patients suspected of having or clinically diagnosed with SMA. The link to the program is below:
Take on Thymidine Kinase 2 deficiency (TK2d)
Whether you're living with an MDS, have been diagnosed with TK2d or are a parent, caregiver, or healthcare professional (HCP) who wants to learn more about MDS and TK2d, visit www.tk2d.com for more information. We can all take on TK2d together.
Gene Therapy Patient Education
The American Society of Gene and Cell Therapy has a variety of educational resources available on their website. Visit https://www.asgct.org/education to learn more about the basics of gene therapy, the clinical trial process and the potential of gene therapy for specific diseases including SMA and MTM.
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