Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

2024 Myasthenia Gravis Virtual Learning Series

Virtual Learning Programs

Presenters: Srikanth Muppidi, MD, Stanford University - Claire Spahn, Pharm D, Stanford University - Jeffrey Rosenfeld PhD., MD, FAAN, Loma Linda University School of Medicine - Leslie Delfiner, MD, Montefiore Medical Center

Supported by: Alexion, Argenx, Genentech, UCB

Jun 11, 2024

MDA Virtual Learning: FSHD - Updates in Research

Virtual Learning Programs

Presenters: Rabi Tawil, MD; Professor of Neurology Pathology and Laboratory Medicine at University of Rochester Medical Center

Supported by: Avidity Biosciences, Fulcrum Therapeutics

Jun 4, 2024

MDA Virtual Learning: Navigating Challenging Behaviors in Children with NMD

Virtual Learning Programs

Presenters: Heidi Light-Giglio, M.Ed., BCBA

May 2, 2024

MDA Virtual Learning: Updates in Research and Clinical Care for CMT

Virtual Learning Programs

Presenters: Dr. Steven Scherer

Mar 26, 2024

MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease

Virtual Learning Programs

Presenters: Dr. Natalie Truba from Nationwide Children’s Hospital

Mar 12, 2024

MDA Virtual Learning: OPMD

Virtual Learning Programs

Presenters: Dr. Bernard Brais

Feb 29, 2024

The Promise of Gene Therapy in LGMD 21R9: AskBio Community Industry Update Webinar

Community Industry Update Webinars

Presenters: Nick Johnson

Supported by: AskBio

Jan 31, 2024

UCB Generalized Myasthenia Gravis Webinar

Community Industry Update Webinars

Presenters: Christyn Edmundson, MD

Dec 15, 2023

MDA Virtual Learning: Caring for the Caregiver

Virtual Learning Programs

Presenters: Christina Trout, Kelly McCoy Gross

Supported by: Edgewise

Nov 29, 2023

MDA Virtual Learning: Disclosing Your Disability at Work

Virtual Learning Programs

Presenters: Brian Chao, Michael Lewis

Supported by: Edgewise

Nov 16, 2023

VYVGART Youniversity

Community Industry Update Webinars

Presenters: Brian Droker, MD, MS, Doug C., Patient Ambassador

Supported by: Argenx

Nov 14, 2023

MDA Engage Symposium: California

MDA Engage Symposia

Presenters: John W. Day, Srikanth Muppidi, Tina Duong, Craig McDonald, Erik Henricson, Neelam Goyal, Marie Beaudin, Min Kang, Srikanth Muppidi

Supported by: Alexion, Argenx, Avidity Biosciences, Biomarin, Edgewise, Janssen, Sarepta Therapeutics, UCB

Nov 11, 2023

MDA Virtual Learning: Home Modifications

Virtual Learning Programs

Presenters: Lorraine Woodward

Nov 8, 2023

PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion

Community Industry Update Webinars

Presenters: Sanjay Rakhade MD, PhD, Joachim Scholz, MD

Supported by: Alexion

Oct 17, 2023

MDA Engage Symposium - Minneapolis, MN

MDA Engage Symposia

Supported by: Edgewise, PTC Therapeutics, Sarepta Therapeutics

Sep 23, 2023

MDA Virtual Learning: Friedreich’s Ataxia

Virtual Learning Programs

Sep 19, 2023

MDA Virtual Learning: Pompe Disease

Virtual Learning Programs

Supported by: Amicus Therapeutics

Sep 13, 2023

MTPA presents Conversations About RADICAVA ORS®(edaravone) Chapter 3: An ALS Caregiver’s Perspective

Community Industry Update Webinars

Supported by: Mitsubishi Tanabe Pharma America

Aug 22, 2023

MDA Virtual Learning Preparing for Emergencies

Virtual Learning Programs

Aug 16, 2023

Gene Therapy 101

Virtual Learning Programs

Presenters: Natalie Goedeker, Craig Zaidman

Jun 22, 2023

MDA Engage Symposium: Princeton, NJ

MDA Engage Symposia

Supported by: Amylyx, Apellis, Biogen, Genentech, MTPA, Scholar Rock

Jun 3, 2023

ALS Learning Series

Virtual Learning Programs

Presenters: Doreen Ho

Supported by: Cytokinetics, Mitsubishi Tanabe Pharma America

May 4, 2023

MDA Virtual Learning: Accessible Travel

Virtual Learning Programs

Presenters: Presenters for this webinar included Michael Lewis, the Director of Disability Policy for MDA, Mindy Henderson, Senior Director and Editor in Chief of Quest Media, and Lorraine Woodward, CEO of Becoming rentABLE.

May 1, 2023