Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

MDA Virtual Learning: Accessible Travel
MDA Virtual Learning: Accessible Travel
Virtual Learning Programs
Presenters: Presenters for this webinar included Michael Lewis, the Director of Disability Policy for MDA, Mindy Henderson, Senior Director and Editor in Chief of Quest Media, and Lorraine Woodward, CEO of Becoming rentABLE.
May 1, 2023
MDA Engage: Spinal Muscular Atrophy Symposium
MDA Engage: Spinal Muscular Atrophy Symposium
MDA Engage Symposia
Dec 21, 2022
Amyotrophic Lateral Sclerosis (ALS) Symposium
Amyotrophic Lateral Sclerosis (ALS) Symposium
MDA Engage Symposia
Supported by: Apellis, Baxter, Biogen, Cytokinetics, Ionis Pharmaceuticals, Mitsubishi Tanabe Pharma America
May 17, 2022
Limb girdle muscular dystrophy (LGMD) Symposium
Limb girdle muscular dystrophy (LGMD) Symposium
MDA Engage Symposia
Jun 4, 2022
Duchenne Muscular Dystrophy (DMD) Symposium
Duchenne Muscular Dystrophy (DMD) Symposium
MDA Engage Symposia
Supported by: Biomarin, Edgewise, NS Pharma, PTC Therapeutics, Sarepta Therapeutics
Aug 23, 2022
Myasthenia Gravis (MG) Symposium
Myasthenia Gravis (MG) Symposium
MDA Engage Symposia
Supported by: Alexion, Argenx, Horizon Therapeutics, Janssen, Regeneron, UCB
Oct 18, 2022
Pediatric Care for Neuromuscular Disease
Pediatric Care for Neuromuscular Disease
MDA Engage Community Education Seminars
Feb 20, 2021
Transitions Care from Pediatric to Adult
Transitions Care from Pediatric to Adult
MDA Engage Community Education Seminars
Apr 10, 2021
Technology for Independence
Technology for Independence
MDA Engage Community Education Seminars
Supported by: Mitsubishi Tanabe Pharma America
Oct 12, 2022
Gene Replacement Therapy for SMA
Gene Replacement Therapy for SMA
MDA Engage Community Webinars
Presenters: Dr. Crystal Proud and Tanicia Johnson from Children's Hospital of The King's Daughter in Norfolk, VA
Supported by: AveXis
Mar 19, 2020
Facioscapulohumeral Muscular Dystrophy (FSHD)
Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage Community Webinars
Presenters: Johanna Hamel, neurologist at the University of Rochester
Supported by: Fulcrum Therapeutics
Oct 21, 2021
Updates in Research and Treatments in Pompe Disease
Updates in Research and Treatments in Pompe Disease
MDA Engage Community Webinars
Presenters: Diana Dimitrova, PhD, researcher from Oregon Health and Science University
Supported by: Amicus Therapeutics, AskBio
Apr 5, 2022
ALS-Parenting at Challenging Times
ALS-Parenting at Challenging Times
MDA Engage Community Webinars
Presenters: Archana Basu Ph.D, and Cindy Moore Ph.D, from Massachusetts General Hospital
Supported by: Cytokinetics, Mitsubishi Tanabe Pharma America
Apr 26, 2022
Nutrition and Neuromuscular disease
Nutrition and Neuromuscular disease
MDA Engage Community Webinars
Presenters: Kristen Cherosky, RD from Nationwide Children's Hospital
May 19, 2022
MDA Engage: Durable Medical Equipment (DME) Series Part 1-Respiratory Equipment
MDA Engage: Durable Medical Equipment (DME) Series Part 1-Respiratory Equipment
MDA Engage Community Webinars
Presenters: Chad Behling, Respiratory Therapist at UNC Health Care
Supported by: Baxter
Jun 24, 2022
Adaptive Driving
Adaptive Driving
MDA Engage Community Webinars
Presenters: Anne Hegberg, OTR/L, CDRS, CDI, Co-Owner and Clinician at STRIVE for Independence
Supported by: Edgewise, Mobility Works
Jul 26, 2022
MDA Engage DME Series: Speech Equipment
MDA Engage DME Series: Speech Equipment
MDA Engage Community Webinars
Presenters: Carrie Reichwein, MS, CCC-SLP, Speech Language Pathologist at Penn State Hershey Medical Center
Aug 16, 2022
Dental Health and Neuromuscular Disease
Dental Health and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Dr. Ronak Parikh, founder and dentist of BayBreeze Dental in Wesley Chapel, Florida
Sep 8, 2022
Updates in Becker Muscular Dystrophy - Genetic Testing
Updates in Becker Muscular Dystrophy - Genetic Testing
MDA Engage Community Webinars
Presenters: Suman Jayadev, MD and Lauren Brown, MS, CGC
Supported by: Edgewise
Sep 15, 2022
Updates in research and treatments in Myotonic Dystrophy
Updates in research and treatments in Myotonic Dystrophy
MDA Engage Community Webinars
Presenters: Dr. Lauren Elman, MDA Care Center Director at Penn Medicine
Supported by: Avidity Biosciences
Sep 20, 2022
The Development Journey of Spinraza® (nusinersen): From Advocacy to Treatment and Beyond
The Development Journey of Spinraza® (nusinersen): From Advocacy to Treatment and Beyond
Community Industry Update Webinars
Jan 27, 2022
Taking a Universal Approach to Protecting Muscle in Duchenne and Becker Muscular Dystrophy: Results from Edgewise’s Phase 1 Trial in Adults with Becker Muscular Dystrophy
Taking a Universal Approach to Protecting Muscle in Duchenne and Becker Muscular Dystrophy: Results from Edgewise’s Phase 1 Trial in Adults with Becker Muscular Dystrophy
Community Industry Update Webinars
Feb 23, 2022
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
MDA Engage Community Webinars
Feb 24, 2022
Pfizer Presents: The CIFFREO Study
Pfizer Presents: The CIFFREO Study
Community Industry Update Webinars
Jun 16, 2022
Taking on Your Tomorrow with gMG
Taking on Your Tomorrow with gMG
Community Industry Update Webinars
Jun 28, 2022