MDA Clinical & Scientific Conference, March 8-11, Orlando, FL - Join Us In Person or Virtually

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Daily Living Webinar: Home Solutions for Greater Independence
Daily Living Webinar: Home Solutions for Greater Independence
Virtual Learning Programs
Presenters: Theresa Berner MOT, OTR/L, ATP
Supported by: Amgen, Edgewise, Tanabe Pharma America
Oct 28, 2025
Daily Living: Maintaining a Healthy Weight
Daily Living: Maintaining a Healthy Weight
Virtual Learning Programs
Presenters: Laura Watne MS RD CSP, Children's Hospital Colorado
Sep 30, 2025
Updates in Research and Care: Finding the Right Care
Updates in Research and Care: Finding the Right Care
Virtual Learning Programs
Presenters: Lora Clawson, MSN CRNP, Director of ALS Clinical Services, Johns Hopkins Medicine
Supported by: Edgewise, Tanabe Pharma America, Regeneron
Sep 25, 2025
Daily Living: Navigating Hospital Stays
Daily Living: Navigating Hospital Stays
Virtual Learning Programs
Presenters: Julianne Meiser, MSS, LCSW
Supported by: Amgen
Jun 17, 2025
MDA Webinar: Mental Wellness and Self Care
MDA Webinar: Mental Wellness and Self Care
Virtual Learning Programs
Presenters: Brianna Mills, LMFT
Supported by: Amgen, Amicus Therapeutics, Edgewise, Tanabe Pharma America, Scholar Rock
May 19, 2025
MDA Webinar: Cardiac Care for Neuromuscular Disease
MDA Webinar: Cardiac Care for Neuromuscular Disease
Virtual Learning Programs
Presenters: Gavin Hickey, MD Cardiologist UPMC in Pittsburgh, PA
Supported by: Edgewise, Tanabe Pharma America, Regeneron
Apr 23, 2025
MDA Webinar: Navigating Benefits
MDA Webinar: Navigating Benefits
Virtual Learning Programs
Presenters: Bethany Lilly / Christina Trout, RN, MSN
Supported by: Amgen, Edgewise, Tanabe Pharma America
Mar 31, 2025
MDA Webinar: Care and Planning Resources for Adults with Neuromuscular Disease
MDA Webinar: Care and Planning Resources for Adults with Neuromuscular Disease
Virtual Learning Programs
Presenters: Lakelyn Eichenberger, Ph.D, Honor and Home Instead / Katie Fields College Outreach Coordinator and Disability Inclusion Consultant, Starkloff Disability Institute
Jan 28, 2025
MDA Webinar: Updates in Friedreich's Ataxia
MDA Webinar: Updates in Friedreich's Ataxia
Virtual Learning Programs
Presenters: Dr. Elena Caron, Associate Professor of Pediatric Neurology and MDA Care Center Director, Le Bonheur Children's Hospital
Supported by: Biogen, Lexeo Therapeutics
Jan 27, 2025
Air Travel Policies and Procedures
Air Travel Policies and Procedures
Virtual Learning Programs
Presenters: Shannon Wood, Danica Gonzalves, Esq, Steven Cullen
Supported by: Amicus Therapeutics
Jan 21, 2025
BMD Series Part II: Updates in Research and Care and Patient Perspectives Panel
BMD Series Part II: Updates in Research and Care and Patient Perspectives Panel
Virtual Learning Programs
Presenters: Terry Heiman-Patterson, MD Professor and Neurologist, Temple University
Supported by: Edgewise
Dec 11, 2024
AGAMREE SUMMIT
AGAMREE SUMMIT
Community Industry Update Webinars
Dec 10, 2024
MDA Learning Series: DMD
MDA Learning Series: DMD
Virtual Learning Programs
Presenters: Dr. Kaitlin Batley, Dr. Emily Hayes, Little Hercules Foundation
Supported by: Regenxbio
Dec 9, 2024
BMD Series Part I: Cardiac Care for Becker Muscular Dystrophy
BMD Series Part I: Cardiac Care for Becker Muscular Dystrophy
Virtual Learning Programs
Presenters: Rabia Khan, MD Clinical Assistant Professor and Transplant Cardiologist, Iowa Health Care
Supported by: Edgewise
Dec 6, 2024
MDA Webinar: Sibling Support
MDA Webinar: Sibling Support
Virtual Learning Programs
Presenters: Emily Holl, MFA, MSW Director Sibling Support Project
Supported by: Edgewise
Nov 19, 2024
Gene Therapy Series Part 3: Administering Gene Therapy: Questions to Ask Your Provider
Gene Therapy Series Part 3: Administering Gene Therapy: Questions to Ask Your Provider
Virtual Learning Programs
Presenters: Aravindhan Veerapandiyan, MD (Dr. Panda) Director of the Comprehensive Neuromuscular Program at Arkansas Children's Hospital
Oct 30, 2024
Gene Therapy Learning Series
Gene Therapy Learning Series
Virtual Learning Programs
Oct 30, 2024
MDA Webinar: Independent Living
MDA Webinar: Independent Living
Virtual Learning Programs
Presenters: Shannon Wood Director of Disability Policy, MDA - Amber Bosselman, Certified Disability Life Coach
Supported by: Edgewise
Oct 15, 2024
MDA Virtual Learning Series: LGMD
MDA Virtual Learning Series: LGMD
Virtual Learning Programs
Presenters: Dr. Peter Kang, MD, Dr. Forum Kamdar, MD, PhD, FACC, FHFSA, Dr. Molly Stark, PT, DPT
Sep 30, 2024
MDA Virtual Learning: Personal Care Attendants at College
MDA Virtual Learning: Personal Care Attendants at College
Virtual Learning Programs
Presenters: Annie Tulkin, Adrienne Frumberg
Supported by: Edgewise
Sep 26, 2024
MDA Learning Series: Equipment and Assistive Technology
MDA Learning Series: Equipment and Assistive Technology
Virtual Learning Programs
Presenters: Tom Simon, Katie Metheny, OTR, Anne Hegberg, OTR/L, CDRS, CDI, Ryan Rausch
Sep 24, 2024
MDA Virtual Learning: What Does College Look Like These Days?
MDA Virtual Learning: What Does College Look Like These Days?
Virtual Learning Programs
Presenters: Annie Tulkin, Adrienne Frumberg
Supported by: Edgewise
Sep 18, 2024
MDA's SMA Virtual Learning Series Q&A and Drug Development Roundtable
MDA's SMA Virtual Learning Series Q&A and Drug Development Roundtable
Virtual Learning Programs
Sep 17, 2024
MDA Webinar: Home-Based Care
MDA Webinar: Home-Based Care
Virtual Learning Programs
Presenters: Lakelyn Eichenberger, PhD
Supported by: Edgewise
Sep 17, 2024
Gene Therapy Series Part 2: Understanding the Insurance Process & What’s New in Gene Therapy Across NM
Gene Therapy Series Part 2: Understanding the Insurance Process & What’s New in Gene Therapy Across NM
Virtual Learning Programs
Presenters: Michael Storey, Paul Melmeyer, Barry Byrne
Sep 5, 2024