US FDA Grants Expanded Approval of ELEVIDYS Gene Therapy for DMD Patients Ages 4 and Above

Join MDA

Here’s to being a member of MDA - Where groundbreaking research and dedicated care, and support meets connecting with the community.

Whether you are newly diagnosed, a family member, a dedicated physician, caregiver, friend, advocate, or lifelong member of the MDA community, together we are making the impossible possible. MDA is here for you today and every moment along the way.

Get Started

When you join MDA, you'll recieve:

  • Catalyst

    MDA's nationwide clinic network patients are connected to specialists, clinical trials, and FDA approved treatments.

  • Care

    For kids and adults from day one of diagnosis and throughout their life's journey.

  • Champion

    A vital expression of our commitment to empower individuals living with neuromuscular disease to live longer, more independent lives.

  • Community

    A vital expression of our commitment to empower individuals with neuromuscular disease to live full, independent lives.

Who is eligible?

Anyone who is…

  • a person diagnosed with a form of muscular dystrophy, ALS, or related neuromuscular disease
  • an advocate
  • a caregiver
  • a family member
  • a supporter who resides in the United States or Puerto Rico

Parents or legal guardians must register for those under the age of 18.

Get Started

Stronger together.

Strength in unity. Strength in community.

Ready to join MDA for yourself or your loved one?

Join the MDA community and receive access to our many resources and supports. Joining is free and takes about 5 minutes to complete.

Get Started Friends and family can follow along by

Join MDA

Help MDA to empower the people we serve to live longer, more independent lives, in the way that best suits YOU!

You can make an even greater impact by inviting your friends, family, coworkers and everyone you know to get involved in our mission, campaigns and activities. Join our community today.


Field's marked with asterisk(*) are required.

I am a Caregiver, Friend, Family Member, Supporter

Please complete the information below to become a member of MDA today. Parents or legal guardians must register for those under the age of 18.

If you have any questions during this process, please call MDA’s Resource Center at 1-833-ASK-MDA1 (1-833-275-6321 or email ResourceCenter@mdausa.org. The Resource Center is available Monday – Friday 9AM to 5PM CT.

I am living with NMD

MDA is here for every step of your journey. Please complete the information below to become a member of MDA today. Parents or legal guardians must register for those under the age of 18.


If you have any questions during this process, please call MDA’s Resource Center at 1-833-ASK-MDA1 (1-833-275-6321 or email ResourceCenter@mdausa.org. The Resource Center is available Monday – Friday 9AM to 5PM CT.


Other loved ones interested in joining MDA too? Please add a Relationship below:

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Questions? We're here to help.

Give us a call at 1-833-ASK-MDA1 (1-833-275-6321) or email us at ResourceCenter@mdausa.org and our Resource Specialists will be happy to answer any questions you have about this process. The Resource Center is available Monday through Friday 9AM to 5PM CT

Connect with a Specialist Today!