MDA Applauds Expanded US FDA Approval of ELEVIDYS Gene Therapy for DMD Patients Ages 4 and Above

Innovations in Care

We provide access to support and programs that empower the lives of people living with neuromuscular diseases.

Print-Ready Educational Materials

MDA has prepared print-ready materials to help educate the neuromuscular disease community about the fundamentals of neuromuscular disease as well as topics related to daily living. New resources are always in development, so please check back periodically to access more information and materials.

Disease Fact Sheets

These fact sheets provide general information about each disease including signs and symptoms, diagnosis, prognosis and treatments.

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ALS Fact Sheet cover
Amyotrophic Lateral Sclerosis (ALS)

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Fact sheet for Becker muscular dystrophy.
Becker muscular dystrophy (BMD)

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Fact sheet for Charcot-Marie-Tooth disease.
Charcot-Marie-Tooth disease (CMT)

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Fact sheet for Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)

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Fact sheet for Facioscapulohumeral muscular dystrophy.
Facioscapulohumeral muscular dystrophy (FSHD)

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Fact sheet for Friedreich Ataxia
Friedreich Ataxia (FA)

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Fact sheet for Limb-girdle muscular dystrophies.
Limb-girdle muscular dystrophies (LGMD)

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Fact sheet for Mitochondrial Myopathies.
Mitochondrial Myopathies (MM)

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Myasthenia gravis (MG)
Myasthenia gravis (MG)

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Myotonic dystrophy downloadable document.
Myotonic dystrophy (DM)

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Pompe Disease downloadable resource.
Pompe Disease

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Fact sheet for Spinal muscular atrophy.
Spinal muscular atrophy (SMA)

To learn more about these and other neuromuscular diseases supported by MDA, visit our disease webpages.

Disease Specific Resources

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Detecting Signs and Symptoms of DMD cover
Detecting Signs and Symptoms of DMD

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DMD FAQ document.
DMD FAQ

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How DMD Happens pdf cover thumbnail
How DMD Happens

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Maintaining Breathing Function with ALS
Maintaining Pulmonary Function with ALS

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Maintaining Pulmonary Function with DMD document.
Maintaining Pulmonary Function with DMD

Emergency Care Resources

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ALS Emergency Room Alert Card
ALS Emergency Room Alert Card

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DMD Emergency Room Alert Card cover
DMD Emergency Room Alert Card

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Emergency Preparedness for People with Disabilities

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MG Emergency Room Alert Card
MG Emergency Room Alert Card

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NMD ER Alert Summary
NMD ER Alert Summary

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Preparing for Emergencies: A Checklist for People with NMD

Exercise

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At-Home Physical Therapy Exercises for ALS

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Screenshot for at home physical therapy for DMD.
At-Home Physical Therapy Exercises for DMD

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At-Home Physical Therapy Exercises for Pompe Disease

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At-Home Physical Therapy Exercises for Spinal Muscular Atrophy
At-Home Physical Therapy Exercises for SMA

Gene Therapy

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DMD Alert Card

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ER Alert Summary

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Understanding Gene Therapy
Gene Therapy FAQ

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Gene Therapy Planning Checklist
Gene Therapy Planning Checklist

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A Guide to Gene Therapy
Gene Therapy: A Guide for What to expect

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Myths and Facts About Gene Therapy
Gene Therapy: Myths and Facts

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The Impact of Gene Therapy on Families first page
The Impact of Gene Therapy on Families

General Neuromuscular Disease Resources

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Caring for your Mental Health
Caring for your Mental Health

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Clinical Trials 101.
Clinical Trials 101

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Clinical Trials FAQ

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Thumbnail image for the Dental Health pdf
Dental Health

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Financial Independence Checklists
Financial Independence Checklists

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Downloadable health insurance worksheet from the MDA.
Health Insurance Worksheet

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MDA Guide for Caregivers

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MDA Transition Guide: Pediatric to Adult Care
MDA Transition Guide: Pediatric to Adult Care

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Medical Terminology
Medical Terms You Need to Know

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Mental Health Considerations for Caregivers
Mental Health Considerations for Caregivers

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Neuromuscular Disease and Your Mental Health
Neuromuscular Disease and Your Mental Health

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Planning for End-of-Life Care PDF Cover
Planning for End-of-Life Care

Genetics and Genetic Testing

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image of first page of Genetic Testing Options for ALS
Genetic Testing Options for Amyotrophic Lateral Sclerosis (ALS)

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Genetic Testing Options for Charcot-Marie-Tooth (CMT)

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Genetic Testing Options for Limb-girdle Muscular Dystrophy (LGMD) thumbnail
Genetic Testing Options for Limb-girdle Muscular Dystrophy (LGMD)

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Genetic Testing Options for Pompe Disease thumbnail
Genetic Testing Options for Pompe Disease

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Genetics and Neuromuscular Disease
Genetics and Neuromuscular Disease

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How Genetic Neuromuscular Disease Happens
How Genetic Neuromuscular Disease Happens

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How Spinal Muscular Atrophy Happens
How SMA Happens: Inheritance Patterns

K-12 Education Resources

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Downloadable educational flyer on Duchenne Muscular Dystrophy.
MDA Educators' Flyer - Duchenne Muscular Dystrophy

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Downloadable educational flyer on Myotonic dystrophy.
MDA Educators' Flyer - Myotonic Dystrophy

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Downloadable educational flyer on Spinal Muscular Atrophy.
MDA Educators' Flyer - Spinal Muscular Atrophy

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MDA Transition Guide: Pediatric to Adult Care
MDA Transition Guide: Pediatric to Adult Care

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Downloadable teachers guide from the MDA.
Teachers Guide

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The IEP Process: Access To Education K-12
The IEP Process

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