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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Educational Materials

MDA has prepared resources and materials to help educate the neuromuscular disease community about the fundamentals of neuromuscular disease. New resources are always in development so please check back periodically to access more information and materials. Should you have any questions on these materials, please reach out to mdaengage@mdausa.org.

Disease Fact Sheets

These fact sheets provide general information about each disease including signs and symptoms, diagnosis, prognosis and treatments.

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Fact sheet for Amyotrophic Lateral Sclerosis.
Amyotrophic Lateral Sclerosis (ALS)

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Fact sheet for Becker muscular dystrophy.
Becker muscular dystrophy (BMD)

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Fact sheet for Charcot-Marie-Tooth disease.
Charcot-Marie-Tooth disease (CMT)

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Fact sheet for Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy (DMD)

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Fact sheet for Facioscapulohumeral muscular dystrophy.
Facioscapulohumeral muscular dystrophy (FSHD)

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Fact sheet for Limb-girdle muscular dystrophies.
Limb-girdle muscular dystrophies (LGMD)

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Fact sheet for Mitochondrial Myopathies.
Mitochondrial Myopathies (MM)

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Myasthenia gravis downloadable document.
Myasthenia gravis (MG)

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Myotonic dystrophy downloadable document.
Myotonic dystrophy (DM)

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Pompe Disease downloadable resource.
Pompe Disease

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Fact sheet for Spinal muscular atrophy.
Spinal muscular atrophy (SMA)

To learn more about these and other neuromuscular diseases supported by MDA, click here to visit our disease webpages.


Disease Specific Resources


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Screenshot for at home physical therapy for DMD.
At home physical therapy for DMD

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DMD Emergency Room Alert Card

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DMD FAQ document.
DMD FAQ

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Maintaining Pulmonary Function with DMD document.
Maintaining Pulmonary Function with DMD

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MG Emergency Room Alert Card
MG Emergency Room Alert Card

 

General Neuromuscular Disease Resources


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Basics of genetic testing.
Basics of Genetic Testing

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Clinical Trials 101.
Clinical Trials 101

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Clinical Trials FAQ.
Clinical Trials FAQ

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Genetics and Neuromuscular Disease
Genetics and Neuromuscular Disease

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Downloadable health insurance worksheet from the MDA.
Health Insurance Worksheet

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How Genetic Neuromuscular Disease Happens
How Genetic Neuromuscular Disease Happens

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Medical Terminology
Medical Terms You Need to Know

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The IEP Process: Access To Education K-12
The IEP Process

 

Teacher Resources


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Downloadable educational flyer on Duchenne Muscular Dystrophy.
MDA Educators' Flyer - Duchenne Muscular Dystrophy

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Downloadable educational flyer on Myotonic dystrophy.
MDA Educators' Flyer - Myotonic Dystrophy

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Downloadable educational flyer on Spinal Muscular Atrophy.
MDA Educators' Flyer - Spinal Muscular Atrophy

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Downloadable teachers guide from the MDA.
Teachers Guide

 

MDA Thanks our sponsors:

  • Amicus
  • Genentech
  • Sanofi Genzyme.

Thank you to Sanofi Genzyme for supporting MDA's genetic educational materials.