Learning you have a neuromuscular disease can be devastating, but remember: You're not alone.
A new diagnosis can bring a lot of questions. You may be trying to understand what your diagnosis means, manage symptoms, find care, or figure out what support is available now and over time.
MDA is here to help.
You don’t have to figure everything out all at once. MDA can support you with information, connect you with resources, and help you find what you need, when you need it.
Here are a few suggestions about where to begin:
Learn About Your Diagnosis
Understanding the disease you or someone you love has been diagnosed with can help you ask questions and prepare for conversations with your care team and others.
MDA offers plain-language materials about symptom management, care considerations, and treatment options where available. Understand Your Diagnosis
Access Specialized Care
Neuromuscular diseases often involve more than one area of care. MDA Care Centers and affiliates are located at leading healthcare institutions across the country and connect individuals and families with multidisciplinary teams experienced in neuromuscular disease.
This unique model brings the right expertise together around the person rather than asking families to manage every aspect of care separately. Find an MDA Care Center Near You
Connect with MDA
Sometimes questions don’t fit neatly into any one category. Start with the question you have, and MDA can help you find the right place to begin.
MDA’s expert staff are available by phone or email to connect you with programs and support beyond medical care resources. Find Resources
For a more focused discussion, you can schedule a free 30-minute video or phone appointment with an MDA Support Specialist to talk through your needs or next steps. Talk with an MDA Support Specialist
Find Caregiver and Family Resources
Are you a family member or loved one supporting someone living with neuromuscular disease? MDA has resources that can help you learn more, prepare for conversations, and find support for your role too. Find Caregiver and Family Support
Hear From Others in the Neuromuscular Disease Community
Sometimes it helps to hear from people who are living with similar questions, changes, and experiences. MDA’s Quest blog, podcast and magazine share stories, practical tips, expert conversations, and everyday perspectives from people living with neuromuscular disease, families, caregivers, and professionals across the community. Explore Quest Media
