MDA is leading the fight to free individuals — and the families who love them — from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength, independence and life. We use our collective strength to help kids and adults live longer and grow stronger by finding research breakthroughs across diseases, caring for individuals from day one and empowering families with services and support in hometowns across America.
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The heart of our mission
MDA's CEO Steve Derks previews the year ahead for the organization and share his aspirations for a future where kids and families are free from the harmful effects of muscular dystrophy, ALS and related life-threatening diseases.
Meet Joe: MDA's National Goodwill Ambassador
Joe Akmakjian was diagnosed with spinal muscular atrophy at 15 months old. Now age 24, he has doubled his life expectancy and continues defying limits every day.
Help Families Live Unlimited
Live Unlimited is MDA’s campaign, inspired by families, to rally the nation to help kids and adults living with muscle-debilitating diseases defy their limits and thrive. Learn how you can help more families live unlimited now.
Five Questions with CMT Researchers Robert Burgess and Scott Harper
Researchers Robert W. Burgess and Scott Q. Harper are conducting MDA-funded research that may lead to a new therapy for Charcot-Marie-Tooth disease.
Zane's Clinical Trial Gives Hope
Although Zane is affected by DMD, he and his family are determined not to let this disease slow him down.
MDA Research and Grants
MDA is funding a new generation of researchers, bringing innovations to usher in breakthroughs that will lead to treatments and cures for neuromuscular diseases.
MDA uses every dollar we raise wisely to ensure it has the greatest impact in the fight to end muscular dystrophy. We strive to provide you with transparency and clarity around how contributions make a difference and how MDA is supporting your community. Learn more below.
