"Within 24 hours of our son being diagnosed, we contacted MDA. We learned there was hope." — Parent of a child with DMD
If you or someone you love is affected by muscular dystrophy, ALS or related muscle-debilitating diseases, please know you’re not alone. MDA stands alongside our families in our communities to assist and empower the kids and adults we serve. We care for kids and adults from day one so they get the very best treatment. And, we empower families with services and support in hometowns across America to help them thrive and stay independent, including summer camps for kids, support groups, equipment assistance and more.
Our new Clinical Trials Finder Tool guides you through a series of questions to pinpoint trials for you or a loved one. In just a few minutes, you can gain access to vital research opportunities nationwide.
When I was 25, I took an unlikely job as an editor at a travel magazine. As a journalism graduate, the editing part of the job was a natural fit; as someone who’d never flown on a plane, the traveling part seemed a little daunting. I’d been diagnosed with Charcot-Marie-Tooth disease six years prior, but at the time, I could still walk a mile and traverse stairs and step over the side of a common hotel bathtub.
Recent college graduate Brandi Hawkins draws on the challenges in her own life to help others
MDA has been a part of my family’s life ever since I was diagnosed with SMA Type 2 at the MDA Care Center at Children’s Hospital Colorado, and being a part of the MDA family has been nothing but positive for us.
Learn about MDA’s efforts to help remove barriers and empower teens and young adults, including its focus on pediatric and adult care centers providing world-class care to young adults with muscle-debilitating diseases.
Eric, a retired engineer with limb-girdle muscular dystrophy, relies on his service dog, Dusty, to help with everyday tasks and enable his independent lifestyle.
Every year, MDA Summer Camp provides thousands of kids with muscular dystrophy and related muscle-debilitating diseases “the best week of the year.” It's a place where anything is possible and where kids can live beyond limits and without barriers for at least one week out of the year.Find Out More
MDA offers a wide range of guidebooks and booklets to help individuals and families navigate their journey with muscular dystrophy, ALS and related muscle-debilitating diseases.
We believe in the incredible talents and futures of young adults with neuromuscular diseases. Through our peer-led initiative, we are committed to supporting you through resources, community building, and programming as you move from high school, to higher education and employment, and pursue your independent living goals.Join the Community
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 800-572-1717. If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.