Innovations in Care
We provide programs and services that transform the lives of people affected by neuromuscular disease.
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Everything You Need to Know About Clinical Trials for Neuromuscular Diseases
Everything You Need to Know About Clinical Trials for Neuromuscular Diseases
Clinical trials are the cornerstone of research. When a new medical treatment, device, or strategy is being developed, researchers need to know how it will perform in humans.
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MDA Ambassador Guest Blog: Pursuing My Dreams While Living with a Rare Disease
MDA Ambassador Guest Blog: Pursuing My Dreams While Living with a Rare Disease
MDA Ambassadors play an essential role in furthering MDA’s mission while representing and empowering the neuromuscular disease community. Quest Ambassador Guest Blog series provides a platform to share their personal stories, perspectives, and experience.
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Making the Impossible Possible: One Man’s Journey on the Camino de Santiago de Compostela
Making the Impossible Possible: One Man’s Journey on the Camino de Santiago de Compostela
Every year, hundreds of thousands of people embark on a challenging journey to traverse the Camino de Santiago de Compostela, traveling days and weeks on foot to arrive in Santiago, Spain.
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Quest Podcast: Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles
Quest Podcast: Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles
In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and problem-solving.
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What to Know Before You Start Adaptive Driving
What to Know Before You Start Adaptive Driving
For people living with neuromuscular diseases, driving can be more than a convenience — it can be a road to independence.
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How to Choose a College with a Disability
How to Choose a College with a Disability
Abby lives with spinal muscular atrophy (SMA) and uses a power wheelchair, so she contacted the schools ahead of time to tell them about her accessibility needs.
Resources for You
Here you'll find comprehensive information and resources that can make a critical difference in understanding, managing and living day-to-day with muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength and mobility.
Educational Materials
MDA offers a wide range of educational materials to help individuals and families navigate their journey with muscular dystrophy, ALS and related diseases.
MDA Resource Center: We’re Here For You
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.
