US FDA Grants Expanded Approval of ELEVIDYS Gene Therapy for DMD Patients Ages 4 and Above

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Providing Help and Hope

If you or someone you love is affected by muscular dystrophy, ALS or related muscle-debilitating diseases, please know you’re not alone. MDA stands alongside our families in our communities to assist and empower the kids and adults we serve. We care for kids and adults from day one so they get the very best treatment. And, we empower families with services and support in hometowns across America to help them thrive and stay independent, including summer camps for kids, support groups, equipment assistance and more.

Resources for You

Here you'll find comprehensive information and resources that can make a critical difference in understanding, managing and living day-to-day with muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength and mobility.

MDA Summer Camp

Every year, MDA Summer Camp provides thousands of kids with muscular dystrophy and related muscle-debilitating diseases “the best week of the year.” It's a place where anything is possible and where kids can live beyond limits and without barriers for at least one week out of the year. 

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Young Adult Programs

We believe in the incredible talents and futures of young adults with neuromuscular diseases. Through our peer-led initiative, we are committed to supporting you through resources, community building, and programming as you move from high school, to higher education and employment, and pursue your independent living goals.

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MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

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