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Skip to: MOVR Overview & Announcements • Information for the Neuromuscular Community • Information for MOVR Sites and Interestsed Care Centers • Information for Researchers, Academia and Clinicians

MOVR

Decorative map of MOVR locations.

The first-of-its-kind data hub powered by MDA’s network of Care Centers, that will aggregate clinical, genetic and patient-reported data for multiple NMDs to improve health outcomes and accelerate drug development.

MDA’s mission is to empower the people we serve to live longer, more independent lives.

MDA launched the Neuromuscular Observational Research (MOVR) Data Hub study to help achieve this mission. About 10 years ago, MDA recognized that there was a significant data shortage in the neuromuscular disease space and started crafting strategic approaches to accelerate data collection and its use by researchers, clinicians, and drug developers. One strategy that was identified was to leverage the MDA Care Center Network. Capturing these data across the MDA Care Center Network is providing valuable knowledge on disease progression for drug development and will serve as a rich source of real-world data in regulatory submissions and post-approval processes.

The objectives for MOVR include enhancing disease understanding, accelerate drug development and optimize health outcomes for our neuromuscular community.

MOVR

4,000+ participants enrolled

60+ active MOVR sites

31 core data elements across 7 diseases

34 states represented

MOVR Overview & Announcements

Neuromuscular Observational Research (MOVR) Data Hub Overview

Information for the Neuromuscular Community

Why is MOVR important?

Frequently Asked Questions

MOVR In the News

Information for MOVR Sites and Interested Care Centers

MOVR Site Quick Links and Resources

What is the MOVR Visualization and Reporting Platform

Join the MOVR Data Hub study

Information for Researchers, Academia and Clinicians

MOVR Objectives

Research's FAQ's and resource inks

MOVR Research Advisory Committee

Contact the MOVR Data Hub: We're here for you

Whether you are interested in becoming a MOVR site, have a data request or need technical support, we can help. Email us at MDAMOVR@mdausa.org

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The Muscular Dystrophy Association (MDA)
is a qualified 501(c)(3) tax-exempt organization.

2023, Muscular Dystrophy Association Inc. All rights reserved.

Privacy Policy | Terms of Use | State Fundraising Notices