Care and Connection That Matter
Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.
Next Steps Seminars
MDA Next Steps Seminars offer information, resources, and connection during critical life transitions such as receiving a new diagnosis. Delivered virtually, this program aims to empower learners to move forward in their journey with confidence. Learners will be able to participate in small group discussions, hear directly from expert clinicians, and learn from others who are farther along in the journey. Due to the interactive nature of the Next Steps Seminars, the LIVE, in-person sessions will not be recorded. Upon request, participants also receive companion materials in the mail to support their learning. This program is provided at no cost. Registration is required.
Registration is offered on a rolling basis to people living with a neuromuscular disease and their caregiver(s). To allow for small group learning, space is limited. Due to the interactive nature of the Next Steps Seminars, the LIVE, in-person sessions will not be recorded. Upcoming dates are listed below. If you cannot make the date listed below or if no date is listed, please continue to register and we will let you know when the next session is scheduled.
Healthcare Professionals: This program is primarily for people living with NMD and their families. Healthcare professionals will be allowed to attend only if there is room available. If you are interested in attending a seminar, please contact mdaengage@mdausa.org.
Seminar Options
Newly Diagnosed Adults: This session is specifically for adults ages 18+ who have been diagnosed with a neuromuscular disease in the last 2-3 years. Caregivers are also invited to attend. Topics will include navigating insurance and public benefits, finding medical care, equipment, research, mental wellness, and more.
Newly Diagnosed Pediatrics: This session is specifically for parents/guardians of children under the age of 18 who have been diagnosed with a neuromuscular disease in the last 2-3 years. Topics will include early intervention and special education services, insurance, public benefits, finding medical care, genetic testing, mental wellness for the child and caregiver, and more.
Newly Diagnosed ALS: This session is specifically for individuals who have been recently diagnosed with ALS, their caregiver(s) and family members. Topics will include medical care, equipment and home modifications, financial planning, mental wellness, and more.
Transition to Adulthood: This session is specifically for youth and young adults between the ages of 14-26 who are living with a neuromuscular disease. Parents/guardians are also encouraged to attend. Topics will include higher education, employment, disability benefits, medical care, independent living, social and mental wellness, and more.
Upcoming Dates
Next Steps Newly Diagnosed Adults
Live Session Tuesday, April 29, 2025
5:30pm ET, 4:30pm CT, 2:30pm PT
Questions? Please email resourcecenter@mdausa.org or call 1-833-ASK-MDA1 (1-833-275-6321).
If you are interested in sponsorship opportunities, please reach out to mdapartners@mdausa.org.
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