Innovations in Care
Resource List for Families
Upon learning you've been diagnosed with a neuromuscular disease, understanding where to begin can be challenging. The resources below can help you navigate your journey.
If you're looking for one-on-one assistance, the National MDA Resource Center is available Monday through Friday 8 a.m. to 5:30 p.m. CST by phone at 1-833-ASK-MDA1 (1-833-275-6321) or email at ResourceCenter@mdausa.org.
Use our Clinical Trials Finder Tool to find a clinical trial for you or a loved one.
Following local weather emergencies, MDA actively tries to reach all individuals it serves who live in the affected areas to assess their well-being and offer assistance.
As neuromuscular diseases progress, MDA Care Center team members are prepared to recommend and prescribe various types of medical equipment that can increase independence and enhance quality of life.
Individuals with a neuromuscular disease are at increased risk of serious and possibly life-threatening complications from the flu, so it's important to stay informed and takes steps to protect yourself and your family.
MDA honors family caregivers for their tireless support and dedication during National Family Caregivers Month in November and all year-round.
We are committed to supporting young adults with resources, programming and community connection as you move through high school, higher education, employment and independent living.
MDA offers support and information to assist parents of children with neuromuscular disease in preparing and advocating for the best education possible.
Learn more about the MOVR data hub and how you can participate.
Newborn screening is a public health program in the United States that aims to identify newborns with certain serious and life-threatening genetic diseases that can be treated, and for which earlier treatment may contribute to better outcomes.
View the latest edition of our award-wining Quest magazine, filled with resources, stories and support for individuals and families with a neuromuscular disease.
The following resources, listed by state, can provide a valuable connection to getting services and resources you may need.
MDA has gathered an extensive list of related online resources, including government websites, to help assist you in locating assistance relating to education, careers, accessibility, transportation, medical benefits and much more.
- MDA Care Centers
- MDA Resource Center
- MDA Summer Camp
- Medical Education for Health Care Providers