Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Resource List for Families

Upon learning you've been diagnosed with a neuromuscular disease, understanding where to begin can be challenging. The resources below can help you navigate your journey.

If you're looking for one-on-one assistance, the National MDA Resource Center is available Monday through Friday 8 a.m. to 5:30 p.m. CST by phone at 1-833-ASK-MDA1 (1-833-275-6321) or email at ResourceCenter@mdausa.org.

Clinical Trials Finder Tool

Use our Clinical Trials Finder Tool to find a clinical trial for you or a loved one.

Emergencies

Following local weather emergencies, MDA actively tries to reach all individuals it serves who live in the affected areas to assess their well-being and offer assistance.

Equipment Assistance

As neuromuscular diseases progress, MDA Care Center team members are prepared to recommend and prescribe various types of medical equipment that can increase independence and enhance quality of life. 

Flu Season

Individuals with a neuromuscular disease are at increased risk of serious and possibly life-threatening complications from the flu, so it's important to stay informed and takes steps to protect yourself and your family. 

For Caregivers

MDA honors family caregivers for their tireless support and dedication during National Family Caregivers Month in November and all year-round.

For Young Adults

We are committed to supporting young adults with resources, programming and community connection as you move through high school, higher education, employment and independent living.

K-12 Education

MDA offers support and information to assist parents of children with neuromuscular disease in preparing and advocating for the best education possible.

MOVR Data Hub

Learn more about the MOVR data hub and how you can participate.

Newborn Screening

Newborn screening is a public health program in the United States that aims to identify newborns with certain serious and life-threatening genetic diseases that can be treated, and for which earlier treatment may contribute to better outcomes.

Quest Magazine

View the latest edition of our award-wining Quest magazine, filled with resources, stories and support for individuals and families with a neuromuscular disease.

State-Specific Resources

The following resources, listed by state, can provide a valuable connection to getting services and resources you may need.

Additional Resources

MDA has gathered an extensive list of related online resources, including government websites, to help assist you in locating assistance relating to education, careers, accessibility, transportation, medical benefits and much more.