FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Calendar of Events

Date
2026 Make Your Move
Jan 1, 2026 to Dec 31, 2026
2026 Fundraise Your Way
Jan 1, 2026 to Dec 31, 2026
2026 Hop-A-Thon
Jan 1, 2026 to May 30, 2026
2026 Muscle Walk Your Way
Jan 1, 2026 to Dec 31, 2026
2026 DECA
Jan 1, 2026 to Dec 31, 2026
2026 NALC
Jan 1, 2026 to Dec 31, 2026
Research and Care Webinar: Spotlight on New Research Jan 21, 2026 @ 11:00AM ET
Atlanta Night of Hope Gala

Atlanta, GA

Mar 14, 2026
2026 runDisney Springtime Surprise Weekend

Walt Disney World
Orlando, Florida

Apr 16, 2026 to Apr 19, 2026
2026 runDisney Springtime Surprise Weekend

Disney’s Hollywood Studios, Florida

Apr 16, 2026
2026 Boston Marathon Presented by Bank of America

Boston, Massachusetts

Apr 20, 2026
2026 Ride for Independence

Seven Springs Mountain Resort
Champion, Pennsylvania

Apr 25, 2026 to Apr 26, 2026
2026 Muscle Walk of Missouri

Forest Park
St. Louis, Missouri

May 2, 2026
MDA Golf Classic

Mesa, AZ

May 7, 2026
Mike Bellotti’s Toast to Strength Gala and Golf Tournament

Eugene, Oregon

May 14, 2026 to May 15, 2026
2026 Muscle Walk of Illinois

Cantigny Park
Wheaton, Illinois

May 16, 2026
Wings Over Wall Street Gala

New York, NY

Jun 4, 2026
All That Jazz Gala

Albany, NY

Jun 11, 2026
Boston Muscle Team Golf Outing

Plymouth, MA

Jun 23, 2026
Colony Hardware Golf

Event website and exact date coming soon! Please contact Paige Hampton for more information phampton@mdausa.org.

Sep 1, 2026
Nashville Toast to Life Gala

Nashville, TN
Event website and exact date coming soon! Please contact Lindsey Beard for more information lbeard@mdausa.org

Sep 1, 2026
Sam Osborn Memorial Golf Outing

Omaha, NE

Sep 17, 2026 to Sep 18, 2026
2026 Muscle Walk of Minnesota

Wolfe Park,
St Louis Park, Minnesota

Sep 19, 2026
Art & Soul St. Louis

St. Louis, MO
Event website coming soon! Please contact Tiffany Tillotson for more information ttillotson@mdausa.org

Oct 1, 2026
2026 Bank of America Chicago Marathon

Chicago, Illinois

Oct 11, 2026
Chicago Toast to Life Gala

Chicago, IL
Event website coming soon! Please contact Tiffany Tillotson for more information ttillotson@mdausa.org

Oct 16, 2026
Dallas Uncork a Cure Gala

Dallas, TX
Event website and exact date coming soon! Please contact Lindsey Beard for more information lbeard@mdausa.org

Nov 1, 2026
2026 TCS NYC Marathon

NYC, New York

Nov 1, 2026
2026 Muscle Walk of Dallas

Dallas, Texas

Nov 7, 2026
Passport to a Cure Gala

Phoenix, AZ
Event website coming soon! Please contact Kayla Mortellaro for more information. Kmortellaro@mdausa.org

Nov 13, 2026
Orlando Toast to Life Gala

Orlando, FL
Event website coming soon! Please contact Paige Hampton for more information phampton@mdausa.org

Nov 14, 2026
Berks County Black N Blue Ball

Leesport, PA
Event website coming soon! Please contact Elizabeth McLinn for more information emclinn@mdausa.org

Nov 20, 2026

MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

Request Information