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Calendar of Events

View our Past Events

Event Date
Engage Myotonic Dystrophy Symposium

Join us for this Engage Symposium where we discuss content such a best practices in clinical care, research updates, genetics, drug development panel, and much more surrounding Myotonic Dystrophy.

Apr 28, 2021 to Apr 29, 2021
@ 11:00 AM ET both days
Engage Webinar: Preparing for the future - Finding the best college and career for you

Selecting where to go to college and what career you may want to go into is a big decision. With more and more members of the neuromuscular disease community attending college and entering the workforce, it is important to have an idea on what questions to ask and what to think about when looking at your career. This webinar will discuss important items to be aware of and to look for when choosing a college. The webinar will also look at tips on how to select a career path. The featured presenter of this webinar is Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community.

May 5, 2021 @ 3:00 PM ET
MDA Facebook Live: ALS Care and Research Updates

Join this live conversation to learn about the latest in care and research updates related to ALS.

May 6, 2021 @ 3:00pm ET
Engage ALS Symposium

Join us for this Engage Seminar where we discuss content such a best practices in clinical care, research updates, genetics and more topics focusing around ALS.

May 12, 2021 to May 13, 2021
@ 3:00 PM ET both days
Engage Webinar: Gene Therapy and Duchenne Muscular Dystrophy

Gene therapy is being studied as a potential treatment option for DMD (Duchenne Muscular Dystrophy). This webinar will explore what gene therapy is and how it works for individuals living with DMD. The landscape of DMD gene therapy research will also be discussed. The featured presenter of this webinar is neurologist at Texas Children’s Hospital, Farida Abid, MD.

May 20, 2021 @ 3:00 PM ET
Engage LGMD Symposium

Join us for this Engage Seminar where we discuss content such a best practices in clinical care, research updates, drug development roundtable and many more topics focusing on LGMD.

Jun 5, 2021 @ 11:00 AM ET
Engage Webinar: Medical Equipment and Assistive Devices for Neuromuscular Disease (Part 1)

Many in the neuromuscular community will have a need for some type of durable medical equipment and assistive devices. This webinar will review the different types of equipment and assistive devices, who prescribes equipment, and what questions you should ask your provider before obtaining equipment. The featured presenter of this webinar is physical therapist, Vicky Kern.

Jul 20, 2021 @ 3:00 PM ET
Engage Webinar: Medical Equipment and Assistive Devices for Neuromuscular Disease (Part 2)

This webinar will be a follow up to the durable medical equipment (DME) webinar held in July. This webinar will discuss eligibility for DME, highlight how to obtain equipment and what to know about maintaining equipment. The featured presenter of this webinar is physical therapist, Vicky Kern.

Aug 10, 2021 @ 3:00 PM ET

MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.

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