US FDA Grants Expanded Approval of ELEVIDYS Gene Therapy for DMD Patients Ages 4 and Above

MDA Ambassadors

MDA Ambassadors are individuals living with neuromuscular disease who share their stories and authentic perspectives to raise awareness, inspire support, and advance the MDA mission.

MDA National Ambassadors

MDA is represented by two National Ambassadors each year, one child and one adult. Meet this year’s National Ambassadors!

Meet Leah

“It is important to advocate for yourself and to raise your voice for those who cannot. By sharing my story, I hope to raise awareness and get others to join in supporting MDA’s mission.”

Age: 16

Diagnosis: Scapuloperoneal Spinal Muscular Atrophy

Read More About Leah

Meet Ira

“Living one’s best life is living a life that is filled with encouraging others, enlightening others, and propelling others towards the greatness that they are truly capable of. Through this honor of being national ambassador, I pledge to live my very best life and be the light that brightly illuminates the significance, the beauty, and the brilliance of those with neuromuscular disease.”

Age: 39

Diagnosis: Spinal Muscular Atrophy

Read More About Ira

MDA Ambassadors

MDA is proud of the nationwide network of dedicated Ambassadors. Read some of their stories here and learn more about their journeys on our blog.

Interested in serving as an MDA Ambassador? Review the Ambassador Role Description and apply today! For more information contact


I hope to inspire people to live their lives to the fullest and to advocate for themselves and others in everything they do.

Read Lily's Story


Muscular Dystrophy has forced me to rely on my faith and not my strength to get me through the tough times.

Read Dave's Story


Doing the things you love is possible.

Read Carol's Story


Seeing others support MDA makes my heart smile.

Read Mashauna's Story


‘Never Let Your Limitations Be Your Limit’ is the message I have created for myself to live by.

Read Sydney's Story


We are all in this together.

Read Leo's Story


MDA has shown me that I’m not only special the way I am, but I’m strong too.

Read Jennifer's Story


Always do your best, because your best is good enough.

Read Jacob's Story


The support we receive through MDA programming helps to brighten the lives of so many families.

Read Fred's Story


Even with a terminal illness, you can live each day with hope and purpose.

Read Linda's Story


I hope to be able to share my story with others and let them know that they are never alone and that their future is bright.

Read Chase's Story


I am very thankful for the opportunities MDA provided for me and my family to find a sense of community.

Read Sumukha's Story