BREAKING NEWS: New drug approved by the FDA for Duchenne muscular dystrophy. Learn more about this new treatment option.

If you missed an issue of our Quest Newsletter, catch up and access past issues below. Each newsletter features exclusive online articles, provides information about new and upcoming educational resources and events, and ongoing clinical trials that are enrolling.

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Quest February 2024

Meet Your 2024 National Ambassadors - Quest Podcast: Finding Meaning and Fulfillment - Pursuing Passion Day by Day - Finding Fulfillment in Retirement - Letters from Leah: Hello 2024 - Raising Rare Disease Awareness by Design - MDA Virtual Education: Access to Gene Therapy - MDA Advocacy Team’s Goals for 2024 - Questions to Ask Before a Clinical Trial - MDA Quest Media Community Writing Contest - Come Work for MDA - Recruiting Clinical Trials

Quest January 2024
Image of montage of people that support MDA.

A Letter From Our CEO - Quest Podcast: Wrapping Up with Amy & Leah - Celebrating 2023 Advocacy Accomplishments - Expert Airplane Travel Tips - COVID-19 and Neuromuscular Disease - The Difference Between a Clinical and Genetic Diagnosis - Genetic Testing & Family Planning - MDA Virtual Education: Guide for Caregivers - Quest for Success: Abhiram Srivatsa, DO - Simply Stated: Leigh Syndrome - Come Work for MDA - Recruiting Clinical Trials

Quest December 2023

Read the Newest Issue of Quest - Quest Podcast: Intention, Action, and Community Inclusion - The Year of the Volunteer: Celebration & Gratitude - Reflections on Serving as an MDA National Ambassador - Letters from Leah: A Note of Gratitude - Questions to Ask When Seeking a Diagnosis - MDA Next Steps Seminar: Newly Diagnosed Pediatrics - The Latest News on Federal Benefit Programs - Wings Over Wall Street - Come Work For MDA - Recruiting Clinical Trials

Quest November 2023
Quest Media Holiday Gift Guide

'Tis the Season: Unwrap the Quest Media Holiday Gift Guide! - Coping with Family Caregiver Fatigue - Corticosteroids and Nutrition - Quest Podcast: Job Searching, Interviewing, & Employment - Comcast Takes Accessibility to the Next Level - What Makes You Uncomfortable About Advocacy? - MDA Virtual Learning: Disclosing Your Disability at Work - MDA Virtual Learning: Caring for the Caregiver - Ambassador Guest Blog: Studying Abroad - MDA Volunteers Find Career Inspiration - Come Work For MDA - Recruiting Clinical Trials

Quest October 2023
Man and woman shaking hands

Job Searching with a Disability - The Journey to Self-Acceptance and Empowerment - Quest Podcast: Wheelchair Barbie Talks Advocacy & Inclusion - New Therapy Brings Hope for Pompe Disease - DMD Gene Therapy and Insurance Denials - What do Genetic Counselors Do? - MDA Advocates for Newborn Screening - Community Education: Transition Guide from Pediatric to Adult Care - Ambassador Guest Blog: Marv & Me - 5 Things You Should Know About NMD - Come Work For MDA - Recruiting Clinical Trials

Quest September 2023
Cover of Quest Issue 3, 2023

Read the New Issue of Quest - Expert Life Hacks from an OT - Three Community Resources You Need - Being Unique is Powerful - Letters From Leah: The Importance of Physical Activity - Quest Podcast: Accessible Air Travel & Advocacy Updates - Increasing Access to Genetic Medicine - Playgrounds for Everybody - Quest Media Survey - MDA Virtual Learning Series: Friedreich's Ataxia - Come Work For MDA - Recruiting For Clinical Trials

Quest August 2023
Image of an open business sign over top of a transparent cell phone

The New Quest Media Product Guide - Quest Podcast: Talking ALS with Brooke Eby - Feeding Tubes and Nutrition - Stand Up and Go - DMD Gene Therapy Ignites Hope - FAA Authorization Air Travel Update - MDA Mentorship Program for Young Adults - Quest Photo Contest - Decking Out Your Dorm Room - Support Specialists Re-integrate with Care Centers - Come Work For MDA - Recruiting For Clinical Trials

Quest July 2023
Woman in wheelchair drinking a bottle of water.

FDA Approves the First Gene Therapy for DMD - Hydration for Wheelchair Users - Summertime Travel Products and Tips - Quest Podcast: A Conversation with Steve Way - Why Is it So Hard to Get a Diagnosis? - Traveling with a Disability: A First-Person Point-of-View - Virtual Education Workshop: Access to Coverage: Mental Health - A Letter to Muscular Dystrophy - Open Style Labs Incontinence Survey - Now Hiring! Come Work For MDA - Recruiting For Clinical Trials

Quest June 2023
Quest June 2023 cover and banner

Read the New Issue of Quest Magazine - Ambassador Blog: Happy Father's Day - Quest Podcast: Expert Accessible Travel Tips - Home, Secure Home - The Importance of Women's Wellness - MDA on the Hill 2023 - MDA Virtual Education: Gene Therapy - MDA In-Person Events Build Community - The Value of Natural History Studies - In Case You Missed It - Now Hiring! Come Work For MDA - Recruiting Clinical Trials

Quest May 2023
MDA Quest Poscast logo and heady shots of Mindy Henderson and Megan DeJarnett.

FDA Approves New Treatment for ALS - Quest Podcast: No Such Thing as Normal - How to Find an Accessible Dentist - Ambassador Blog: My Volunteer Journey - Why I Volunteer for MDA - Understanding Substance Use Disorder - MDA Advocates for Improved Air Travel - MDA Virtual Learning Program: ALS Learning Series - MDA Virtual Education: Children’s Mental Health Concerns - Community Connections at Muscle Lab Day - Simply Stated: Emery-Dreifuss Muscular Dystrophy - Now Hiring! Come Work For MDA - Recruiting Clinical Trials

Quest April 2023
Animated image of people holding coins and hearts in front of a jar

Small Endeavors Make a Big Impact - Quest Podcast: The Changing Landscape of Neuromuscular Care - Coming Up: Expert Accessible Travel Advice - Simply Stated: Pompe Disease - Understanding Your Rights as a Shopper - The Magic of MDA Summer Camp - Don’t Lose Your Medicaid Coverage - MDA Virtual Learning Program: Coping with Grief and Loss - MDA Virtual Learning Series: LGMD - Lasting Friendships Through Peer Connections Program - 2023 MDA Clinical and Scientific Conference - FDA Approves Treatment for Friedreich's Ataxia - Come Work For MDA - Recruiting Clinical Trials

Quest March 2023

Read the New Issue of Quest! - Safety and Self-Defense with a Disability - Letters from Leah: Dear Parents - Nutrition on a Budget - Quest Podcast: Catching Up with Bill Crossland - Good News for Rare Diseases - Women and Girls in Science - MDA's Access Workshop: Access to Travel and Transportation - Language Translation Service Expands Community Access - Advocacy Collaboration Grant Recipients Announced - Recruiting Clinical Trials

MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

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