If you missed an issue of our Quest Newsletter, catch up and access past issues below. Each newsletter features exclusive online articles, provides information about new and upcoming educational resources and events, and ongoing clinical trials that are enrolling.
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How to Master Cooking with a Disability - Books to Add to Your Holiday Shopping List - What Is Expanded Access? - The 2026 MDA Clinical & Scientific Conference - Quest Podcast: Celebrating Employment Inclusion with Disability:IN - MDA Daily Living Webinar: Vocational Training and Employment Assistance - Wearable Exoskeletons Improve Movement - Ambassador Guest Blog: Entrepreneurship, Advocacy, & Innovation - Ambassador Guest Blog: Why I am Speaking Up at Hill Day - What to Know About Changes to SNAP - Simply Stated: Updates in Neuropathy Ataxia and Retinitis Pigmentosa Syndrome - Recruiting Clinical Trials

Quest Holiday Product Guide is Here! - Ambassador Guest Blog: Accessible Halloween Costumes - Adaptive Style Hits High Fashion - Insights by Ira: Decades of Impact - Putting the Power in Powerhockey - Disability is Not a Disappearing Act - Ambassador Guest Blog: My Journey with BMD - Quest Podcast: Genetic Coding for New Treatments - Simply Stated: Updates in FSHD - Don't Miss MDA’s Engage Symposiums - Tell Congress to Support Medical Research Funding - Recruiting Clinical Trials

Read the Newest Issue of Quest Magazine - Quest Photo Contest Deadline Extended! - Ready to Ride to Victory - MDA Guest Ambassador Blog: 10 Tips to Navigate Highschool - Back-to-School Adaptive Fashion - Life with Lily: Full Access to Education - Updates in Newborn Screening Legislation - Simply Stated: Updates in CMT - Quest Podcast: Paws with a Purpose - Five Common Corticosteroid Questions - MDA Research & Care Webinar: Finding the Right Care - Recruiting Clinical Trials

MDA Virtual Learning: Spotlight on SMA - Understanding SMA Treatments - Enter the Quest Photo Contest! - Simply Stated: Updates on Friedreich’s Ataxia - Share Your Experience with DM1 - Quest Podcast: Unpacking Disability Pride - Transforming Accessibility for Short Term Rentals - MDA Ambassador Guest Blog: The Joy of Accessible Sailing - MDA Guest Ambassador Blog: Parenting, LGMD, and Choosing Joy - MDA Advocacy Institute: Medicaid and the Path Forward - Simple, Safe Transfer Tips & Equipment - Recruiting Clinical Trials

Insights by Ira: Let’s Get Active This Summer - Top Tips for Flying with Equipment - A Guide to Genetic Testing - Shape the Future of SMA Care - MDA Advocacy’s Education Policy Efforts - Community Industry Update Webinars - MDA Ambassador Guest Blog: Passion and Purpose in Art - MDA Virtual Learning: Living a Full Life - Quest Podcast: Making the Rare Seen - MDA Ambassador Guest Blog: My MG Journey - Simply Stated: MG Treatment Landscape - Recruiting Clinical Trials

Read the Newest Issue of Quest Magazine - Shop the Newest Quest Product Guide - Plan the Perfect Summer Staycation - Shape the Future of SMA Care - MDA Ambassador Guest Blog: Empowerment Through Genetic Testing - Life with Lily: Advocating for Disability Rights - Understanding Threats to the ACL - Fear in Uncertain Times - When ALS Affects the Voice - MDA Virtual Learning: Mitochondrial Myopathy - Simply Stated: RYR-1 - Recruiting Clinical Trials

Share Your Summer Camp Photos - Decades of Dedication - Updates in ALS Trials - The Gold Standard for ALS Care - MDA Virtual Learning Series: ALS - Quest Podcast: Finding Joy in the Midst of Change - When Travel Goes Awry - Mental Health & Well Being - Finding Empowerment in MDA Community Groups - MDA Advocacy Team’s Efforts to Protect Medicaid - Recruiting Clinical Trials

Read the Newest Issue of Quest Magazine - Quest Podcast: PJ’s Protocol - Call to Action: Help Protect Medical Research - Insights by Ira: Celebrating MDA Care Center Physicians - Essential Gear for Traveling with a Disability - Five Tips to Increase Socialization -
MDA Ambassador Guest Blog: Embracing a Sober & Healthy Lifestyle - MDA Ambassador Guest Blog: Say Yes to Burn Boot Camp! - MDA Clinical & Scientific Conference Makes an Impact - MDA Next Steps: Newly Diagnosed Adults - MDA Virtual Learning Webinar: Cardiac Care for NMD - Simply Stated: Updates in Neuromuscular Junction Disorders - Recruiting Clinical Trials

MDA Origin Story: A Grassroots Legacy - 75 Year’s Strong: Take the Survey Today! - Life with Lily: Finding My Voice - Quest Podcast: Navigating Romance - The Beauty of the Unexpected - Spotlight on Dr. Kathryn Moss - MDA’s Development Grants Support Promising Researchers - Advocacy Collaboration Grantees Work Towards Change - Choosing the Right Lift for You - Simply Stated: Updates in Pompe and Glycogen Storage Diseases - Come Work for MDA - Recruiting Clinical Trials

Quest Podcast: Living with Intention - Meet Your 2025 MDA National Ambassadors! - Championing for Change: MDA’s 2025 Advocacy Agenda - MDA Guest Ambassador Blog: The Intersectionality of Identity - MDA Guest Ambassador Blog: Building Authentic Love - MDA Guest Ambassador Blog: Music is the Best Medicine - My Journey Breaking Barriers in Higher Education - MDA Research & Care Webinar: Spinal-Bulbar Muscular Atrophy - New Therapies in Development for Myotonic Dystrophy - Finding the Right AFO for You - Come Work for MDA - Recruiting Clinical Trials

MDA Advocacy Celebrates a Milestone Year - Starting the New Year with Intention - MDA Ambassador Guest Blog: Resetting Priorities - MDA Ambassador Guest Blog: Staying Active and Involved - Winter Weather Safety Tips - Gene Editing Holds Promise as Viable Therapy - Simply Stated: Emerging Therapies for DMD - Understanding and Managing Medical Trauma - MDA Daily Living Webinar: Care and Planning Resources for Adults with Neuromuscular Disease - Spotlight on MDA Research Grant Recipients - Come Work for MDA - Recruiting Clinical Trials

Reflecting on 2024: A Letter from MDA President and CEO, Dr. Wood - Read the Newest Issue of Quest - Quest Podcast: Wrapping up 2024 with Ira and Leah - Looking Back on Air Travel Accessibility Progress - Ambassador Guest Blog: Innovating Travel Accessibility - Ambassador Guest Blog: Prioritizing Mental Health to Beat Winter Blues - Get Cozy with Accessibility and Independence This Winter - MDA Print-Ready Resource: Equipment and Assistive Technology - Behind the Drug: Toferson for ALS - Simply Stated: DMD Therapeutic Strategies - Come Work for MDA - Recruiting Clinical Trials
MDA Resource Center: We’re Here For You
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.