US FDA Grants Expanded Approval of ELEVIDYS Gene Therapy for DMD Patients Ages 4 and Above

If you missed an issue of our Quest Newsletter, catch up and access past issues below. Each newsletter features exclusive online articles, provides information about new and upcoming educational resources and events, and ongoing clinical trials that are enrolling.

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Quest June 2024

Read the Newest Issue of Quest - Quest Podcast - Staying Positive When Plans Change - Special Olympic Medalist Shines Bright - Insights by Ira - Major Victory for Accessible Air Travel - Share Your Personal Airport Assistance Experience - Autoimmune Neuromuscular Disease Treatment Updates - Simply Stated: Endocrine Myopathies - New! Access Workshop on Genetic Testing - Come Work for MDA - Recruiting Clinical Trials

Quest May 2024
Image of a man in a wheelchair looking at a laptop screen.

What Causes ALS? - Quest Podcast: Inspiring Action with Sophie Morgan - Tell Us What You Think - Letters from Leah: I Love Me! - MDA Guest Ambassador Blog: Finding Freedom in Accepting My Disability - Guest Ambassador Blog: Embracing Adventure - Guest Ambassador Blog: The Cruise of a Lifetime - Get Outside: Tips for Outdoor Activities - Discover MDA's “Access the Vote” Campaign - MDA Webinar: Updates in Research for FSHD - MDA Learning Series: Myasthenia Gravis - Come Work for MDA - Recruiting Clinical Trials

Quest April 2024
Montage of National Volunteer Month photos

Celebrating National Volunteer Month - Quest Podcast: Science and Research for New Treatments - New DMD Treatment offers Hope to Families - Experts Discuss Gene Therapy Readiness - Spring 2024 Quest Media Product Guide - Ambassador Guest Blog: My Experience in a Research Study - Ambassador Guest Blog: How MDA Summer Camp Shaped Me - Accessible Spring-Cleaning Tools & Tips - Advancements in Accessible Air Travel - MDA Virtual Learning Program: Planning for End-of-Life Care - Come Work for MDA - Recruiting Clinical Trials

Quest March 2024
Image of Quest Magazine 2024, Issue 1

Read the Newest Issue of Quest - Insights by Ira: An Appetite for Independence - Quest Podcast: Love Made Simple - MDA Ambassador Guest Blog: Love in Full Bloom - Inclusion Outshines Ableism on the Big Stage - Newborn Screening for SMA in All 50 States - Is Alternative Medicine Safe? - Surgery Sometimes, Bracing Often, Caution Always - MDA Virtual Learning Program: Access to Gene Therapy Workshop - MDA Announces College Scholarship Program - Come Work for MDA - Recruiting Clinical Trials

Quest February 2024

Meet Your 2024 National Ambassadors - Quest Podcast: Finding Meaning and Fulfillment - Pursuing Passion Day by Day - Finding Fulfillment in Retirement - Letters from Leah: Hello 2024 - Raising Rare Disease Awareness by Design - MDA Virtual Education: Access to Gene Therapy - MDA Advocacy Team’s Goals for 2024 - Questions to Ask Before a Clinical Trial - MDA Quest Media Community Writing Contest - Come Work for MDA - Recruiting Clinical Trials

Quest January 2024
Image of montage of people that support MDA.

A Letter From Our CEO - Quest Podcast: Wrapping Up with Amy & Leah - Celebrating 2023 Advocacy Accomplishments - Expert Airplane Travel Tips - COVID-19 and Neuromuscular Disease - The Difference Between a Clinical and Genetic Diagnosis - Genetic Testing & Family Planning - MDA Virtual Education: Guide for Caregivers - Quest for Success: Abhiram Srivatsa, DO - Simply Stated: Leigh Syndrome - Come Work for MDA - Recruiting Clinical Trials

Quest December 2023

Read the Newest Issue of Quest - Quest Podcast: Intention, Action, and Community Inclusion - The Year of the Volunteer: Celebration & Gratitude - Reflections on Serving as an MDA National Ambassador - Letters from Leah: A Note of Gratitude - Questions to Ask When Seeking a Diagnosis - MDA Next Steps Seminar: Newly Diagnosed Pediatrics - The Latest News on Federal Benefit Programs - Wings Over Wall Street - Come Work For MDA - Recruiting Clinical Trials

Quest November 2023
Quest Media Holiday Gift Guide

'Tis the Season: Unwrap the Quest Media Holiday Gift Guide! - Coping with Family Caregiver Fatigue - Corticosteroids and Nutrition - Quest Podcast: Job Searching, Interviewing, & Employment - Comcast Takes Accessibility to the Next Level - What Makes You Uncomfortable About Advocacy? - MDA Virtual Learning: Disclosing Your Disability at Work - MDA Virtual Learning: Caring for the Caregiver - Ambassador Guest Blog: Studying Abroad - MDA Volunteers Find Career Inspiration - Come Work For MDA - Recruiting Clinical Trials

Quest October 2023
Man and woman shaking hands

Job Searching with a Disability - The Journey to Self-Acceptance and Empowerment - Quest Podcast: Wheelchair Barbie Talks Advocacy & Inclusion - New Therapy Brings Hope for Pompe Disease - DMD Gene Therapy and Insurance Denials - What do Genetic Counselors Do? - MDA Advocates for Newborn Screening - Community Education: Transition Guide from Pediatric to Adult Care - Ambassador Guest Blog: Marv & Me - 5 Things You Should Know About NMD - Come Work For MDA - Recruiting Clinical Trials

Quest September 2023
Cover of Quest Issue 3, 2023

Read the New Issue of Quest - Expert Life Hacks from an OT - Three Community Resources You Need - Being Unique is Powerful - Letters From Leah: The Importance of Physical Activity - Quest Podcast: Accessible Air Travel & Advocacy Updates - Increasing Access to Genetic Medicine - Playgrounds for Everybody - Quest Media Survey - MDA Virtual Learning Series: Friedreich's Ataxia - Come Work For MDA - Recruiting For Clinical Trials

Quest August 2023
Image of an open business sign over top of a transparent cell phone

The New Quest Media Product Guide - Quest Podcast: Talking ALS with Brooke Eby - Feeding Tubes and Nutrition - Stand Up and Go - DMD Gene Therapy Ignites Hope - FAA Authorization Air Travel Update - MDA Mentorship Program for Young Adults - Quest Photo Contest - Decking Out Your Dorm Room - Support Specialists Re-integrate with Care Centers - Come Work For MDA - Recruiting For Clinical Trials

Quest July 2023
Woman in wheelchair drinking a bottle of water.

FDA Approves the First Gene Therapy for DMD - Hydration for Wheelchair Users - Summertime Travel Products and Tips - Quest Podcast: A Conversation with Steve Way - Why Is it So Hard to Get a Diagnosis? - Traveling with a Disability: A First-Person Point-of-View - Virtual Education Workshop: Access to Coverage: Mental Health - A Letter to Muscular Dystrophy - Open Style Labs Incontinence Survey - Now Hiring! Come Work For MDA - Recruiting For Clinical Trials

MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

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