MDA is dedicated to doing everything in our power to advocate for policies and programs that help save and improve the lives of kids and adults living with neuromuscular disease. Together, we ensure that our collective voice is heard.
Together, we are stronger. That is why we are asking you to join us in advocating for policies that advance biomedical research, ensure that safe and effective treatments are developed and delivered as quickly as possible, improve access to care and services, and maximize opportunities for independence.
Whether you are living with a muscle debilitating disease, or love someone who is. Whether you are a researcher, a health care provider, a teacher, or a community leader. We need your help. MDA advocates are actively engaged in every state across the nation, and in almost every U.S. Congressional district. With your help, we will continue to make a positive impact.
Please take a moment to explore MDA’s advocacy pages to learn more about policies and issues that impact our community, and ways you can get involved. Every MDA advocate is essential to progress, and everyone is welcome. We hope that you will join us in making a difference today.
The FDA must make a decision on whether to approve Eteplirsen to treat DMD by May 26th, 2016.
MDCC stands for the Muscular Dystrophy Coordinating Committee.
Joe Akmakjian was diagnosed with spinal muscular atrophy at 15 months old. Now age 24, he has doubled his life expectancy and continues defying limits every day.
The ability to access air travel impacts many aspects of life—from the kind of job you can have, to where you can live, to whether you can access a provider or participate in a clinical trial that is far away from home.
In a race toward progress, first-time marathoner Michelle draws inspiration and strength from her son living with Duchenne muscular dystrophy.
Live Unlimited is MDA’s campaign, inspired by families, to rally the nation to help kids and adults living with muscle-debilitating diseases defy their limits and thrive. Learn how you can help more families live unlimited now.
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