Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Resource Center

You don't have to navigate your neuromuscular disease journey alone – we’re here to help. The MDA Resource Center is available to provide one-on-one support via phone or email for individuals and families looking for information about the diseases in our program, services, activities and more.

How We Can Help

The Resource Center is your one-stop shop for information such as:

  • How to join MDA
  • MDA’s mission
  • Clinical trials
  • MDA Care Centers
  • MDA ALS Care Centers
  • Accessing MDA services
  • Research advances
  • Advocacy efforts
  • MDA Summer Camp
  • Diseases in MDA’s program
  • The diagnostic process
  • Family outreach opportunities
  • Community resource referrals
  • Volunteer opportunities

Contact Us

MDA Resource Coordinators are available Monday through Friday 9 am to 5 pm CST and are typically able to answer all questions within 24 hours of a request on the next business day. If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are available only in the U.S.

By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email:
Online: Connect with us here