Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Additional Resources

Upon learning you've been diagnosed with a neuromuscular disorder, understanding where to begin once the diagnosis is confirmed can be challenging. The following categories can provide valuable links to services and resources at the national and local levels.

Disability Rights 

  • Administration for Children and Families: An agency of the U.S. Department of Health and Human Services, ACF provides information about programs for people with disabilities, including education, energy assistance, health insurance for children and much more.
  • Americans with Disabilities Act: Find information and technical assistance pertaining to the Americans with Disabilities Act.
  • United States Access Board: Federal agency focused on ensuring accessibility for people with disabilities in architecture, transportation, telecommunications and more.

Employment

Government benefits for people with disabilities

Independent living

Publicly funded medical benefits

  • Administration for Community Living: An agency of the U.S. Department of Health and Human Services, the ACL works nationally and through local departments on aging to empower and educate older adults and their families to make informed decisions, as well as to effectively access all services available through federal, state and community-based programs.
  • Centers for Medicare and Medicaid Services
  • Department of Veteran Affairs: If you’re a U.S. military veteran, learn about medical benefits for which you may be eligible.
  • Medicaid: State-administered programs designed to ensure that certain low-income individuals receive the health care they need. Each state sets its own guidelines for eligibility and covered benefits.
  • Medicare.gov: The official U.S. site for people eligible for and/or covered by Medicare.
  • Medicare Rights Center: A national, nonprofit organization working to help individuals navigate the complexities of Medicare through Web-based education, Medicare counselors, e-newsletters and resource referral.
  • Medicare Savings Program: Learn about state programs that help Medicare beneficiaries with limited income and resources save money on Medicare premiums, deductibles and/or co-pays.
  • State Health Insurance Counseling and Assistance Programs (SHIPs): State offices provide information about choosing Medicare plans, understanding your Medicare bills, how to appeal Medicare decisions and more.
  • State Pharmacy Assistance Programs (SPAP): Many states have SPAPs that help eligible individuals pay for prescription medications based on financial need, age or medical condition. Each SPAP establishes its own eligibility and coverage criteria. To learn about the SPAP in your state, contact your State Health Insurance Assistance Program.