Innovations in Care
MDA is here to help during the emergency recovery stage, once you are safe and out of harm's way in event of a severe weather emergency. Always remember to check in with your local emergency management system first*.
Help from MDA:
Following an extreme weather emergency, MDA makes every attempt to reach those we serve in affected areas to offer assistance. If you or someone you love is served by MDA, please ensure your local MDA office has correct contact information, including cell phone numbers and email addresses, so we can reach out in such a situation.
If you have evacuated to a different area and need MDA services (including help with durable medical equipment or visiting an MDA Care Center), to find an MDA Care Center nearest to you, visit https://www.mda.org and type your zip code into the box labeled “Find MDA in Your Community.”
MDA webinar: Emergency Preparedness Webinar for Individuals with Disabilities explores how important it is for individuals with disabilities or with access and functional needs to design a personalized emergency plan for themselves and their families so they are prepared and empowered to handle any kind of emergency or disaster. Vance Taylor, the chief of the Office of Access and Functional Needs at the California Governor’s Office of Emergency Services, led the presentation. Taylor has a form of muscular dystrophy and uses a power wheelchair.
Emergencies come in many forms. Understanding the potentials of these emergencies and creating a plan can prepare you, reducing the emergency’s impact on you and your family. This guide, together with the checklist below, will help you plan and be prepared for the unexpected.
Preparing for Emergencies: A Checklist for People with Neuromuscular Disease - This checklist will help you get started. Discuss these ideas with your family, friends or a personal care attendant, and prepare an emergency plan.
211: For local information about help with food, housing, health care and more, dial 211 or visit their website. (Note: The 211 service is not available in all areas.)
DisasterAssistance.gov: To obtain the most accurate list of disaster assistance programs for which you may be eligible, complete this anonymous questionnaire.
Mental health help: The SAMHSA Disaster Distress Helpline provides 24/7, year-round crisis counseling and support. Call (800) 985-5990 or (800) 846-8517 (TTY for deaf/hearing impaired); or text TalkWithUs to 66746.
Shelter information: Find open shelters, if an emergency has forced you to evacuate your home, the Red Cross may be able to help.
Find your local Red Cross office: Search by zip code with this easy tool.
Salvation Army: For information about what the Salvation Army is doing in areas affected by a weather emergency, visit the Salvation Army website.
State offices and agencies of emergency management: For information, visit the FEMA website.
A federal program provides personal care aides for individuals with disabilities who need to stay in emergency shelters during a declared disaster.
Learn how to make sure you, your family and caregivers are prepared for the unexpected in case of an emergency.
Because many emergency room doctors and nurses may not be familiar with neuromuscular disorders, a trip to the ER could result in inappropriate care for some people with muscle diseases. This article describes some common problems that can occur in the ER and provides tips for avoiding these scenarios.
If you or someone you love is impacted by severe weather and in need of MDA services - including resources for repairing or replacing durable medical equipment that's been damaged by a storm or information about local groups offering emergency assistance and/or shelter - you can reach MDA by calling 1-833-ASK-MDA1 (1-833-275-6321) or send an email to firstname.lastname@example.org. We recommend programming this information into your cell phone for easy access. Our Resource Center is available Monday-Friday 9am - 5pm CST to assist you.
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