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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Community Education

MDA has prepared resources and materials to help educate our community about the fundamentals of neuromuscular disease. New resources are always in development so please check back periodically to access more information, programs, and materials.

Disease Fact Sheets

These fact sheets provide general information about each disease including: signs and symptoms, diagnosis, prognosis and treatments.

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Fact sheet for Amyotrophic Lateral Sclerosis.
Amyotrophic Lateral Sclerosis (ALS)

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Fact sheet for Becker muscular dystrophy.
Becker muscular dystrophy (BMD)

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Fact sheet for Charcot-Marie-Tooth disease.
Charcot-Marie-Tooth disease (CMT)

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Fact sheet for Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy (DMD)

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Fact sheet for Facioscapulohumeral muscular dystrophy.
Facioscapulohumeral muscular dystrophy (FSHD)

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Fact sheet for Limb-girdle muscular dystrophies.
Limb-girdle muscular dystrophies (LGMD)

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Fact sheet for Mitochondrial Myopathies.
Mitochondrial Myopathies (MM)

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Myasthenia gravis downloadable document.
Myasthenia gravis (MG)

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Myotonic dystrophy downloadable document.
Myotonic dystrophy (DM)

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Pompe Disease downloadable resource.
Pompe Disease

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Fact sheet for Spinal muscular atrophy.
Spinal muscular atrophy (SMA)

To learn more about these and other neuromuscular diseases supported by MDA, click here to visit our disease webpages.

MDA Informational Resources

Important non-disease specific resources for those living with neuromuscular disease and their loved ones.

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Basics of genetic testing.
Basics of Genetic Testing

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Clinical Trials 101.
Clinical Trials 101

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Clinical Trials FAQ.
Clinical Trials FAQ

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Downloadable health insurance worksheet from the MDA.
Health Insurance Worksheet

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Downloadable educational flyer on Duchenne Muscular Dystrophy.
MDA Educators' Flyer - Duchenne Muscular Dystrophy

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Downloadable educational flyer on Myotonic dystrophy.
MDA Educators' Flyer - Myotonic Dystrophy

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Downloadable educational flyer on Spinal Muscular Atrophy.
MDA Educators' Flyer - Spinal Muscular Atrophy

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MDA Fact Sheet.
MDA Fact Sheet

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Downloadable MDA Impact sheet.
MDA Impact Sheet

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MOVR Data Hub information sheet.
MOVR Data Hub Information Sheet

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Downloadable Muscle Walk family letter.
Muscle Walk Family Letter

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Downloadable Muscle Walk overview.
Muscle Walk Overview

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Downloadable resource center flyer.
Resource Center Flyer

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Downloadable teachers guide from the MDA.
Teachers Guide

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Downloadable MDA Volunteer fact sheet.
Volunteer Fact Sheet

Important disease specific resources for those living with neuromuscular disease and their loved ones.

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Screenshot for at home physical therapy for DMD.
At home physical therapy for DMD

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DMD Emergency Room Alert Card

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DMD FAQ document.
DMD FAQ

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Maintaining Pulmonary Function with DMD document.
Maintaining Pulmonary Function with DMD

MDA Engage Community Webinars

MDA hosts educational webinars for our community on many topics. Click here to view our archived programs.

MDA Engage Community Educational Events

Learn more about our ongoing series of live educational meetings across the US and register to attend by clicking the link here.

Industry Update Webinars

MDA’s Industry Update Webinars provide for the community education and awareness around updates from pharmaceutical and biotechnology partners related to work taking place in clinical trials, drug development and/or the patient’s journey experience.  To view past webinars, please click here.

 

MDA Thanks our sponsors:

  • Genentech
  • Mitsubishi Tanabe Pharma, America
  • PTC Therapeutics
  • PerMobil