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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Community Education

MDA has prepared resources and materials to help educate our community about the fundamentals of neuromuscular disease. New resources are always in development so please check back periodically to access more information, programs, and materials.

MDA ha preparado recursos y materiales para ayudar a educar a nuestra comunidad en los fundamentos de enfermedades neuromusculares. Nuevos recursos siempre están en desarrollo. Por favor vuelva a checar periódicamente para tener acceso a más información, programas, y materiales. Haga clic AQUÍ para tener acceso a nuestros recursos en español.

Disease Fact Sheets

These fact sheets provide general information about each disease including: signs and symptoms, diagnosis, prognosis and treatments.

To learn more about these and other neuromuscular diseases supported by MDA, click here to visit our disease webpages.

MDA Informational Resources

Important non-disease specific resources for those living with neuromuscular disease and their loved ones.

Important disease specific resources for those living with neuromuscular disease and their loved ones.

MDA Engage Community Webinars

MDA hosts educational webinars for our community on many topics. Click here to view our archived programs.

MDA Engage Community Educational Events

Learn more about our ongoing series of live educational meetings across the US and register to attend by clicking the link here.

Industry Update Webinars

MDA’s Industry Update Webinars provide for the community education and awareness around updates from pharmaceutical and biotechnology partners related to work taking place in clinical trials, drug development and/or the patient’s journey experience.  To view past webinars, please click here.

 

MDA Thanks our sponsors:

  • Genentech
  • Mitsubishi Tanabe Pharma, America
  • PTC Therapeutics
  • PerMobil