Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

The Development Journey of Spinraza® (nusinersen): From Advocacy to Treatment and Beyond
The Development Journey of Spinraza® (nusinersen): From Advocacy to Treatment and Beyond
Community Industry Update Webinars
Jan 27, 2022
Taking a Universal Approach to Protecting Muscle in Duchenne and Becker Muscular Dystrophy: Results from Edgewise’s Phase 1 Trial in Adults with Becker Muscular Dystrophy
Taking a Universal Approach to Protecting Muscle in Duchenne and Becker Muscular Dystrophy: Results from Edgewise’s Phase 1 Trial in Adults with Becker Muscular Dystrophy
Community Industry Update Webinars
Feb 23, 2022
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
MDA Engage Community Webinars
Feb 24, 2022
Pfizer Presents: The CIFFREO Study
Pfizer Presents: The CIFFREO Study
Community Industry Update Webinars
Jun 16, 2022
Taking on Your Tomorrow with gMG
Taking on Your Tomorrow with gMG
Community Industry Update Webinars
Jun 28, 2022
Conversations about RADICAVA ORS - "A Clinicians Perspective" with Dr Jefferey Rosenfeld
Conversations about RADICAVA ORS - "A Clinicians Perspective" with Dr Jefferey Rosenfeld
Community Industry Update Webinars
Oct 6, 2022
Conversations about RADICAVA ORS - "Getting Started" with Tara Charlton - Clinical Coordinator, ALS Clinic
Conversations about RADICAVA ORS - "Getting Started" with Tara Charlton - Clinical Coordinator, ALS Clinic
Community Industry Update Webinars
Nov 3, 2022
How Wellness is Influenced By Everything You Do - Sponsored by UCB, featuring Judith Thompson, PharmD, MPH, CPHQ More Than Medicine
How Wellness is Influenced By Everything You Do - Sponsored by UCB, featuring Judith Thompson, PharmD, MPH, CPHQ More Than Medicine
Community Industry Update Webinars
Dec 13, 2022
Charcot-Marie-Tooth (CMT)
Charcot-Marie-Tooth (CMT)
MDA Family Panel
Aug 3, 2021
Facioscapulohumeral muscular dystrophy (FSHD)
Facioscapulohumeral muscular dystrophy (FSHD)
MDA Family Panel
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 8, 2021
Neuromuscular Disease Research Year In Review
Neuromuscular Disease Research Year In Review
Facebook Live
Supported by: Genentech, Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Dec 1, 2020
Accessible Fashion
Accessible Fashion
Facebook Live
Supported by: Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Feb 18, 2021
ALS Care and Research Updates
ALS Care and Research Updates
Facebook Live
May 6, 2021
Adaptive Recreation
Adaptive Recreation
Facebook Live
Supported by: Koolway Sports
Jun 30, 2021
Adult Neuromuscular Seminar
Adult Neuromuscular Seminar
MDA Engage Community Education Seminars
Supported by: Genentech
Dec 4, 2021
Spinal Muscular Atrophy (SMA) Symposium
Spinal Muscular Atrophy (SMA) Symposium
MDA Engage Symposia
Supported by: Biogen, Genentech
Nov 13, 2021
Pediatric Neuromuscular Disease Care
Pediatric Neuromuscular Disease Care
MDA Engage Community Education Seminars
Supported by: Amicus Therapeutics
Oct 23, 2021
Mental Health
Mental Health
Facebook Live
Supported by: Amylyx, Genentech, Mitsubishi Tanabe Pharma America
Oct 21, 2021
MDA Engage: Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage: Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage Community Webinars
Supported by: Fulcrum Therapeutics
Oct 21, 2021
Newborn Screening
Newborn Screening
MDA Engage Community Webinars
Presenters: Dr. Marcia Felker from Indiana University Health-Riley Children’s Hospital
Supported by: Astellas, Sanofi Genzyme
Oct 6, 2021
Caregiver Seminar
Caregiver Seminar
MDA Engage Community Education Seminars
Supported by: Mitsubishi Tanabe Pharma America
Sep 25, 2021
2021 Engage Myasthenia Gravis Symposium
2021 Engage Myasthenia Gravis Symposium
MDA Engage Symposia
Supported by: Alexion, Argenx, AstraZeneca Rare Disease, Horizon Therapeutics, UCB
Sep 18, 2021
Your Future, Your Family and Neuromuscular Disease
Your Future, Your Family and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Jordan Bontrager, Genetic Counselor from the University of Rochester Medical Center
Sep 14, 2021
Duchenne Muscular Dystrophy Symposium
Duchenne Muscular Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences, Biomarin, PTC Therapeutics, Sarepta Therapeutics, Solid Biosciences
Aug 14, 2021
Medical Equipment and Assistive Devices for Neuromuscular Disease - Part 2
Medical Equipment and Assistive Devices for Neuromuscular Disease - Part 2
MDA Engage Community Webinars
Presenters: Vicky Kern, Physical Therapist
Aug 10, 2021