FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
Community Industry Update Webinars
Presenters: Sanjay Rakhade MD, PhD, Joachim Scholz, MD
Supported by: Alexion
Oct 17, 2023
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposia
Supported by: Edgewise, PTC Therapeutics, Sarepta Therapeutics
Sep 23, 2023
MDA Virtual Learning: Friedreich’s Ataxia
MDA Virtual Learning: Friedreich’s Ataxia
Virtual Learning Programs
Sep 19, 2023
MDA Virtual Learning: Pompe Disease
MDA Virtual Learning: Pompe Disease
Virtual Learning Programs
Supported by: Amicus Therapeutics
Sep 13, 2023
MTPA presents Conversations About RADICAVA ORS®(edaravone) Chapter 3: An ALS Caregiver’s Perspective
MTPA presents Conversations About RADICAVA ORS®(edaravone) Chapter 3: An ALS Caregiver’s Perspective
Community Industry Update Webinars
Supported by: Mitsubishi Tanabe Pharma America
Aug 22, 2023
MDA Virtual Learning Preparing for Emergencies
MDA Virtual Learning Preparing for Emergencies
Virtual Learning Programs
Aug 16, 2023
Gene Therapy 101
Gene Therapy 101
Virtual Learning Programs
Presenters: Natalie Goedeker, Craig Zaidman
Jun 22, 2023
MDA Engage Symposium: Princeton, NJ
MDA Engage Symposium: Princeton, NJ
MDA Engage Symposia
Supported by: Amylyx, Apellis, Biogen, Genentech, MTPA, Scholar Rock
Jun 3, 2023
ALS Learning Series
ALS Learning Series
Virtual Learning Programs
Presenters: Doreen Ho
Supported by: Cytokinetics, Mitsubishi Tanabe Pharma America
May 4, 2023
MDA Virtual Learning: Accessible Travel
MDA Virtual Learning: Accessible Travel
Virtual Learning Programs
Presenters: Presenters for this webinar included Michael Lewis, the Director of Disability Policy for MDA, Mindy Henderson, Senior Director and Editor in Chief of Quest Media, and Lorraine Woodward, CEO of Becoming rentABLE.
May 1, 2023
Coping with Grief and Loss
Coping with Grief and Loss
Virtual Learning Programs
Presenters: David Stevenson
Supported by: Edgewise
Apr 26, 2023
LGMD Learning Series Playlist
LGMD Learning Series Playlist
Virtual Learning Programs
Presenters: Peter Kang
Supported by: Sarepta Therapeutics
Apr 19, 2023
A Novel Approach to Protect Muscle in DMD and BMD - presented by Edgewise Therapeutics
A Novel Approach to Protect Muscle in DMD and BMD - presented by Edgewise Therapeutics
Community Industry Update Webinars
Supported by: Edgewise
Mar 7, 2023