BREAKING NEWS: New drug approved by the FDA for Duchenne muscular dystrophy. Learn more about this new treatment option.

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Gene Replacement Therapy for SMA
Gene Replacement Therapy for SMA
MDA Engage Community Webinars
Presenters: Dr. Crystal Proud and Tanicia Johnson from Children's Hospital of The King's Daughter in Norfolk, VA
Supported by: AveXis
Mar 19, 2020
Facioscapulohumeral Muscular Dystrophy (FSHD)
Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage Community Webinars
Presenters: Johanna Hamel, neurologist at the University of Rochester
Supported by: Fulcrum Therapeutics
Oct 21, 2021
Updates in Research and Treatments in Pompe Disease
Updates in Research and Treatments in Pompe Disease
MDA Engage Community Webinars
Presenters: Diana Dimitrova, PhD, researcher from Oregon Health and Science University
Supported by: Amicus Therapeutics, AskBio
Apr 5, 2022
ALS-Parenting at Challenging Times
ALS-Parenting at Challenging Times
MDA Engage Community Webinars
Presenters: Archana Basu Ph.D, and Cindy Moore Ph.D, from Massachusetts General Hospital
Supported by: Cytokinetics, Mitsubishi Tanabe Pharma America
Apr 26, 2022
Nutrition and Neuromuscular disease
Nutrition and Neuromuscular disease
MDA Engage Community Webinars
Presenters: Kristen Cherosky, RD from Nationwide Children's Hospital
May 19, 2022
MDA Engage: Durable Medical Equipment (DME) Series Part 1-Respiratory Equipment
MDA Engage: Durable Medical Equipment (DME) Series Part 1-Respiratory Equipment
MDA Engage Community Webinars
Presenters: Chad Behling, Respiratory Therapist at UNC Health Care
Supported by: Baxter
Jun 24, 2022
Adaptive Driving
Adaptive Driving
MDA Engage Community Webinars
Presenters: Anne Hegberg, OTR/L, CDRS, CDI, Co-Owner and Clinician at STRIVE for Independence
Supported by: Edgewise, Mobility Works
Jul 26, 2022
MDA Engage DME Series: Speech Equipment
MDA Engage DME Series: Speech Equipment
MDA Engage Community Webinars
Presenters: Carrie Reichwein, MS, CCC-SLP, Speech Language Pathologist at Penn State Hershey Medical Center
Aug 16, 2022
Dental Health and Neuromuscular Disease
Dental Health and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Dr. Ronak Parikh, founder and dentist of BayBreeze Dental in Wesley Chapel, Florida
Sep 8, 2022
Updates in Becker Muscular Dystrophy - Genetic Testing
Updates in Becker Muscular Dystrophy - Genetic Testing
MDA Engage Community Webinars
Presenters: Suman Jayadev, MD and Lauren Brown, MS, CGC
Supported by: Edgewise
Sep 15, 2022
Updates in research and treatments in Myotonic Dystrophy
Updates in research and treatments in Myotonic Dystrophy
MDA Engage Community Webinars
Presenters: Dr. Lauren Elman, MDA Care Center Director at Penn Medicine
Supported by: Avidity Biosciences
Sep 20, 2022
The Development Journey of Spinraza® (nusinersen): From Advocacy to Treatment and Beyond
The Development Journey of Spinraza® (nusinersen): From Advocacy to Treatment and Beyond
Community Industry Update Webinars
Jan 27, 2022
Taking a Universal Approach to Protecting Muscle in Duchenne and Becker Muscular Dystrophy: Results from Edgewise’s Phase 1 Trial in Adults with Becker Muscular Dystrophy
Taking a Universal Approach to Protecting Muscle in Duchenne and Becker Muscular Dystrophy: Results from Edgewise’s Phase 1 Trial in Adults with Becker Muscular Dystrophy
Community Industry Update Webinars
Feb 23, 2022
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
MDA Engage Community Webinars
Feb 24, 2022
Pfizer Presents: The CIFFREO Study
Pfizer Presents: The CIFFREO Study
Community Industry Update Webinars
Jun 16, 2022
Taking on Your Tomorrow with gMG
Taking on Your Tomorrow with gMG
Community Industry Update Webinars
Jun 28, 2022
Conversations about RADICAVA ORS - "A Clinicians Perspective" with Dr Jefferey Rosenfeld
Conversations about RADICAVA ORS - "A Clinicians Perspective" with Dr Jefferey Rosenfeld
Community Industry Update Webinars
Oct 6, 2022
Conversations about RADICAVA ORS - "Getting Started" with Tara Charlton - Clinical Coordinator, ALS Clinic
Conversations about RADICAVA ORS - "Getting Started" with Tara Charlton - Clinical Coordinator, ALS Clinic
Community Industry Update Webinars
Nov 3, 2022
How Wellness is Influenced By Everything You Do - Sponsored by UCB, featuring Judith Thompson, PharmD, MPH, CPHQ More Than Medicine
How Wellness is Influenced By Everything You Do - Sponsored by UCB, featuring Judith Thompson, PharmD, MPH, CPHQ More Than Medicine
Community Industry Update Webinars
Dec 13, 2022
Charcot-Marie-Tooth (CMT)
Charcot-Marie-Tooth (CMT)
MDA Family Panel
Aug 3, 2021
Facioscapulohumeral muscular dystrophy (FSHD)
Facioscapulohumeral muscular dystrophy (FSHD)
MDA Family Panel
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 8, 2021
Neuromuscular Disease Research Year In Review
Neuromuscular Disease Research Year In Review
Facebook Live
Supported by: Genentech, Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Dec 1, 2020
Accessible Fashion
Accessible Fashion
Facebook Live
Supported by: Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Feb 18, 2021
ALS Care and Research Updates
ALS Care and Research Updates
Facebook Live
May 6, 2021
Adaptive Recreation
Adaptive Recreation
Facebook Live
Supported by: Koolway Sports
Jun 30, 2021