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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

MDA's SMA Virtual Learning Series Q&A and Drug Development Roundtable
MDA's SMA Virtual Learning Series Q&A and Drug Development Roundtable
Virtual Learning Programs
Sep 17, 2024
MDA Webinar: Home-Based Care
MDA Webinar: Home-Based Care
Virtual Learning Programs
Presenters: Lakelyn Eichenberger, PhD
Supported by: Edgewise
Sep 17, 2024
Gene Therapy Series Part 2: Understanding the Insurance Process & What’s New in Gene Therapy Across NM
Gene Therapy Series Part 2: Understanding the Insurance Process & What’s New in Gene Therapy Across NM
Virtual Learning Programs
Presenters: Michael Storey, Paul Melmeyer, Barry Byrne
Sep 5, 2024
Gene Therapy Series Part 1: New Treatments in DMD: Which One is Right for Me?
Gene Therapy Series Part 1: New Treatments in DMD: Which One is Right for Me?
Virtual Learning Programs
Presenters: Natalie Goedecker, Craig Zaidman, MD
Aug 29, 2024
MDA Learning Series: SMA
MDA Learning Series: SMA
Virtual Learning Programs
Presenters: Jason Howard, Kara Arps, Anne Connolly
Supported by: Biogen, Genentech, Scholar Rock
Aug 22, 2024
MDA Virtual Learning: Nutrition with a Neuromuscular Disease
MDA Virtual Learning: Nutrition with a Neuromuscular Disease
Virtual Learning Programs
Presenters: Tad Campbell, Umme Salma Vahanvaty
Supported by: Amicus Therapeutics, Edgewise
Jul 30, 2024
2024 Myasthenia Gravis Virtual Learning Series
2024 Myasthenia Gravis Virtual Learning Series
Virtual Learning Programs
Presenters: Srikanth Muppidi, MD - Claire Spahn - Jeffrey Rosenfeld PhD., MD, FAAN - Leslie Delfiner, MD
Supported by: Alexion, Argenx, Genentech, UCB
Jun 11, 2024
MDA Learning Series: Myasthenia Gravis
MDA Learning Series: Myasthenia Gravis
Virtual Learning Programs
Presenters: Srikanth Muppidi, MD, Claire Spahn, Pharm D, Jeffrey Rosenfeld PhD., MD, FAAN, Leslie Delfiner, MD
Supported by: Alexion, Argenx, Genentech, UCB
Jun 11, 2024
MDA Virtual Learning: FSHD - Updates in Research
MDA Virtual Learning: FSHD - Updates in Research
Virtual Learning Programs
Presenters: Rabi Tawil, MD; Professor of Neurology Pathology and Laboratory Medicine at University of Rochester Medical Center
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 4, 2024
MDA Virtual Learning: ALS Virtual Learning Series
MDA Virtual Learning: ALS Virtual Learning Series
Virtual Learning Programs
Presenters: Lyle Ostrow, MD, Sarah Dramstad, Kristen Larsen, Deborah Taylor, Angela Escalante-Barrow
Supported by: Tanabe Pharma America
May 8, 2024
MDA Virtual Learning: Navigating Challenging Behaviors in Children with NMD
MDA Virtual Learning: Navigating Challenging Behaviors in Children with NMD
Virtual Learning Programs
Presenters: Heidi Light-Giglio, M.Ed., BCBA
May 2, 2024
MDA Virtual Learning: Updates in Research and Treatment Options for Pompe Disease
MDA Virtual Learning: Updates in Research and Treatment Options for Pompe Disease
Virtual Learning Programs
Presenters: Urvi Gautam Desai
Supported by: Amicus Therapeutics
May 1, 2024
MDA Virtual Learning: Updates in Research and Clinical Care for CMT
MDA Virtual Learning: Updates in Research and Clinical Care for CMT
Virtual Learning Programs
Presenters: Dr. Steven Scherer
Mar 26, 2024
MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
Virtual Learning Programs
Presenters: Dr. Natalie Truba from Nationwide Children’s Hospital
Mar 12, 2024
MDA Virtual Learning: OPMD
MDA Virtual Learning: OPMD
Virtual Learning Programs
Presenters: Dr. Bernard Brais
Feb 29, 2024
The Promise of Gene Therapy in LGMD 21R9: AskBio Community Industry Update Webinar
The Promise of Gene Therapy in LGMD 21R9: AskBio Community Industry Update Webinar
Community Industry Update Webinars
Presenters: Nick Johnson
Supported by: AskBio
Jan 31, 2024
MDA Virtual Learning: End of Life Care
MDA Virtual Learning: End of Life Care
Virtual Learning Programs
Presenters: Dr. Ambereen K. Mehta, MD, MPH, FAAHPM
Jan 16, 2024
UCB Generalized Myasthenia Gravis Webinar
UCB Generalized Myasthenia Gravis Webinar
Community Industry Update Webinars
Presenters: Christyn Edmundson, MD
Dec 15, 2023
MDA Virtual Learning: Caring for the Caregiver
MDA Virtual Learning: Caring for the Caregiver
Virtual Learning Programs
Presenters: Christina Trout, Kelly McCoy Gross
Supported by: Edgewise
Nov 29, 2023
MDA Virtual Learning: Disclosing Your Disability at Work
MDA Virtual Learning: Disclosing Your Disability at Work
Virtual Learning Programs
Presenters: Brian Chao, Michael Lewis
Supported by: Edgewise
Nov 16, 2023
MDA Engage Symposium: California
MDA Engage Symposium: California
MDA Engage Symposia
Presenters: John W. Day, Srikanth Muppidi, Tina Duong, Craig McDonald, Erik Henricson, Neelam Goyal, Marie Beaudin, Min Kang, Srikanth Muppidi
Supported by: Alexion, Argenx, Avidity Biosciences, Biomarin, Edgewise, Janssen, Sarepta Therapeutics, UCB
Nov 11, 2023
MDA Virtual Learning: Home Modifications
MDA Virtual Learning: Home Modifications
Virtual Learning Programs
Presenters: Lorraine Woodward
Nov 8, 2023
PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
PREVAIL Phase 3 study in generalized Myasthenia Gravis presented by Alexion
Community Industry Update Webinars
Presenters: Sanjay Rakhade MD, PhD, Joachim Scholz, MD
Supported by: Alexion
Oct 17, 2023
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposia
Supported by: Edgewise, PTC Therapeutics, Sarepta Therapeutics
Sep 23, 2023
MDA Virtual Learning: Friedreich’s Ataxia
MDA Virtual Learning: Friedreich’s Ataxia
Virtual Learning Programs
Sep 19, 2023