Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Mental Health
Facebook Live
Supported by: Amylyx, Genentech, Mitsubishi Tanabe Pharma America
Oct 21, 2021
MDA Engage: Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage Community Webinars
Supported by: Fulcrum Therapeutics
Oct 21, 2021
Newborn Screening
MDA Engage Community Webinars
Presenters: Dr. Marcia Felker from Indiana University Health-Riley Children’s Hospital
Supported by: Astellas, Sanofi Genzyme
Oct 6, 2021
Caregiver Seminar
MDA Engage Community Education Seminars
Supported by: Mitsubishi Tanabe Pharma America
Sep 25, 2021
2021 Engage Myasthenia Gravis Symposium
MDA Engage Symposia
Supported by: Alexion, Argenx, AstraZeneca Rare Disease, Horizon Therapeutics, UCB
Sep 18, 2021
Your Future, Your Family and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Jordan Bontrager, Genetic Counselor from the University of Rochester Medical Center
Sep 14, 2021
Duchenne Muscular Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences, Biomarin, PTC Therapeutics, Sarepta Therapeutics, Solid Biosciences
Aug 14, 2021
Medical Equipment and Assistive Devices for Neuromuscular Disease - Part 2
MDA Engage Community Webinars
Presenters: Vicky Kern, Physical Therapist
Aug 10, 2021
PT, Exercise and Pompe Disease
MDA Engage Community Webinars
Presenters: Scarlett Morris and Mary Crouch Young, Physical Therapists, from the University of Kansas Medical Center
Supported by: Amicus Therapeutics, AskBio, Astellas, Sanofi Genzyme
Jul 28, 2021
Mental Health and Amyotrophic Lateral Sclerosis (ALS)
MDA Engage Community Webinars
Supported by: Amylyx, Biogen, Mitsubishi Tanabe Pharma America
Jul 27, 2021
Introduction to the Diagnostic Odyssey of Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Mackenzie Blaile, MS, LGC, and Melissa Gibbons, MS, LGC, certified genetic counselors from Children’s Hospital Colorado
Supported by: Pfizer
Jul 15, 2021
Medical Equipment and Assistive Devices for Neuromuscular Disease – Part 1
MDA Engage Community Webinars
Presenters: Vicky Kern, Physical Therapists
Supported by: Hillrom
Jul 10, 2021
Polymyositis and Dermatomyositis
MDA Engage Community Webinars
Presenters: Dr. Namita Goyal, Co-Director of the UC Irvine-MDA ALS and Neuromuscular Center
Supported by: Kezar Life Sciences
Jun 30, 2021
Mental Health and Limb-Girdle Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Monique Costello, Clinical Social Worker from Washington University Neuromuscular Disease Center
Jun 23, 2021
Creating strong connections and relationships
MDA Engage Community Webinars
Presenters: Paige Lembeck, a Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center
Jun 10, 2021
2021 MDA Engage Facioscapulohumeral Muscular Dystrophy (FSHD) Family Panel
MDA Family Panel
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 8, 2021
Diagnostic Odyssey of Pompe Disease
MDA Engage Community Webinars
Presenters: Dr. Jennifer Cohen, from Duke University
Supported by: Amicus Therapeutics, Sanofi Genzyme
Jun 7, 2021
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
MDA Engage Symposia
Supported by: Sarepta Therapeutics
Jun 5, 2021
Adult Neuromuscular Seminar
MDA Engage Community Education Seminars
May 22, 2021
Gene Therapy and Duchenne Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Farida Abid, MD, Neurologist at Texas Children’s Hospital
May 20, 2021
Virtual Medical Visits: A 2021 Update
MDA Engage Community Webinars
Presenters: Dr. Victoria Lawson and Yvonne Lanouette from Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire
Supported by: Genentech
May 13, 2021
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
MDA Engage Symposia
Supported by: Alexion, Amylyx, Apellis, Biogen, Cytokinetics
May 12, 2021
Preparing for the future - Finding the best college and career for you
MDA Engage Community Webinars
Presenters: Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community
Supported by: Numotion Foundation
May 5, 2021
2021 MDA Engage Myotonic Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences
Apr 28, 2021