Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Polymyositis and Dermatomyositis
Polymyositis and Dermatomyositis
MDA Engage Community Webinars
Presenters: Dr. Namita Goyal, Co-Director of the UC Irvine-MDA ALS and Neuromuscular Center
Supported by: Kezar Life Sciences
Jun 30, 2021
Mental Health and Limb-Girdle Muscular Dystrophy
Mental Health and Limb-Girdle Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Monique Costello, Clinical Social Worker from Washington University Neuromuscular Disease Center
Jun 23, 2021
Creating strong connections and relationships
Creating strong connections and relationships
MDA Engage Community Webinars
Presenters: Paige Lembeck, a Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center
Jun 10, 2021
2021 MDA Engage Facioscapulohumeral Muscular Dystrophy (FSHD) Family Panel
2021 MDA Engage Facioscapulohumeral Muscular Dystrophy (FSHD) Family Panel
MDA Family Panel
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 8, 2021
Diagnostic Odyssey of Pompe Disease
Diagnostic Odyssey of Pompe Disease
MDA Engage Community Webinars
Presenters: Dr. Jennifer Cohen, from Duke University
Supported by: Amicus Therapeutics, Sanofi Genzyme
Jun 7, 2021
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
MDA Engage Symposia
Supported by: Sarepta Therapeutics
Jun 5, 2021
Adult Neuromuscular Seminar
Adult Neuromuscular Seminar
MDA Engage Community Education Seminars
May 22, 2021
Gene Therapy and Duchenne Muscular Dystrophy
Gene Therapy and Duchenne Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Farida Abid, MD, Neurologist at Texas Children’s Hospital
May 20, 2021
Virtual Medical Visits: A 2021 Update
Virtual Medical Visits: A 2021 Update
MDA Engage Community Webinars
Presenters: Dr. Victoria Lawson and Yvonne Lanouette from Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire
Supported by: Genentech
May 13, 2021
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
MDA Engage Symposia
Supported by: Alexion, Amylyx, Apellis, Biogen, Cytokinetics
May 12, 2021
Preparing for the future - Finding the best college and career for you
Preparing for the future - Finding the best college and career for you
MDA Engage Community Webinars
Presenters: Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community
Supported by: Numotion Foundation
May 5, 2021
2021 MDA Engage Myotonic Dystrophy Symposium
2021 MDA Engage Myotonic Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences
Apr 28, 2021
2021 MDA Engage Transitions in Care from Pediatric to Adult Care
2021 MDA Engage Transitions in Care from Pediatric to Adult Care
MDA Engage Community Education Seminars
Apr 10, 2021
Mental Health and Duchenne Muscular Dystrophy
Mental Health and Duchenne Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Dr. Seth Sorenson, assistant professor and clinical neuropsychologist through the University of Arkansas for Medical Sciences and Arkansas Children’s Hospital in Little Rock, Arkansas
Apr 8, 2021
Maintaining Breathing Function with a Neuromuscular Disease
Maintaining Breathing Function with a Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Debbie Rhodes, Respiratory Therapist and Manager at INTEGRIS Health
Supported by: Hillrom
Mar 30, 2021
Gene Therapy and Neuromuscular Disease
Gene Therapy and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Sanjay Bidichandani, MBBS, PhD, Genetics Section Chief and professor of Pediatrics at the University of Oklahoma Health Sciences Center
Mar 23, 2021
MDA Engage: Mitochondrial Myopathy Symposium
MDA Engage: Mitochondrial Myopathy Symposium
MDA Engage Symposia
Mar 6, 2021
2021 MDA Engage Pediatric Seminar
2021 MDA Engage Pediatric Seminar
MDA Engage Community Education Seminars
Feb 20, 2021
Psychosocial Support for Living with a Chronic Illness
Psychosocial Support for Living with a Chronic Illness
MDA Engage Community Webinars
Presenters: Clinical Nurse Counselor, Mary Holt-Paolone
Jan 28, 2021
Caring for the Caregiver
Caring for the Caregiver
MDA Engage Community Webinars
Presenters: Neuroscience social worker, Jennifer Reidell, from Mayo Clinic in Jacksonville, FL
Supported by: Genentech
Dec 3, 2020
Friedreich Ataxia (FA)
Friedreich Ataxia (FA)
MDA Engage Community Webinars
Presenters: Dr. S.H. Subramony, directs the adult Muscular Dystrophy clinics and Ataxia clinic at the University of Florida Health in Gainesville, FL
Nov 5, 2020
The Treatment Landscape of SMA
The Treatment Landscape of SMA
MDA Engage Community Webinars
Presenters: Dr. Chiriboga practices medicine at Columbia University Irving Medical Center and New York-Presbyterian Hospital
Supported by: Genentech
Oct 14, 2020
2020 MDA Engage Spinal Muscular Atrophy Symposium
2020 MDA Engage Spinal Muscular Atrophy Symposium
MDA Engage Symposia
Supported by: Biogen, Cytokinetics, Genentech
Nov 14, 2020
Physical Therapy and Becker Muscular Dystrophy
Physical Therapy and Becker Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Abby Yenzer, DPT from Washington University School of Medicine
Supported by: Edgewise
Oct 21, 2020
2020 Engage Community Education Seminar - Featuring Speakers from the Southeast
2020 Engage Community Education Seminar - Featuring Speakers from the Southeast
MDA Engage Community Education Seminars
Supported by: Biogen, Genentech, Numotion Foundation
Nov 7, 2020