FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Updates in Research and Care: Navigating Neuromuscular Disease in Women’s Health

October 20th, 2025
4 - 5 pm ET
Live, Virtual Webinar

Join us for a powerful and informative webinar focused on the unique health considerations for women with neuromuscular disease. Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support.

What We’ll Cover:
• Reproductive health, pregnancy, menopause, and hormone-related impacts in women with neuromuscular disease
• Practical guidance for navigating healthcare systems and advocating for care
• Strategies for coordinating between neuromuscular specialists and women’s health providers
• Live Q&A with the presenter

Register

Meet Our Presenter:
Loralei L. Thornburg, MD
Professor, Maternal Fetal Medicine
MFM Division Director
University of Rochester, Strong Memorial Hospital

Dr. Thornburg is a maternal fetal medicine specialist with expertise in caring for women with complex health needs. Her work focuses on improving outcomes through expert clinical care, patient advocacy, and education.

Not available to join live on October 20? Register to receive an email when the webinar is available to view on-demand.

If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.

Faculty: 
Loralei L. Thornburg, MD
Professor, Maternal Fetal Medicine and MFM Division Director

University of Rochester, Strong Memorial Hospital


Thank you to our supporter:

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