Innovations in Care
We provide programs and services that transform the lives of people affected by neuromuscular disease.
Daily Living: Navigating Grief and Change in Neuromuscular Disease
December 2nd, 2025
3:00pm-4:00pm EST
Live, Virtual Webinar
Join MDA for an informative webinar focused on navigating grief and change in neuromuscular disease. Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support.
What We’ll Cover:
- Forms of grief related to neuromuscular disease, including loss of physical abilities, shifts in independence, and anticipatory grief for the future.
- The emotional impact of adjusting to a “new normal” as disease progression changes life roles, expectations, and routines. Resources for people living with a neuromuscular disease, families, and caregivers
- Practical strategies for coping with grief and loss while fostering resilience, finding sources of hope, and creating meaning throughout the journey.
- Identifying signs of prolonged or complicated grief and learning how to locate appropriate resources and support at different points along the grief journey.
- Live Q&A with the presenter
Meet Our Presenter(s):
Melissa Grove, MS, LLPC
Melissa Grove is a strong advocate for people living with limb-girdle muscular dystrophy (LGMD), openly sharing her own experiences since her diagnosis with LGMD2I/R9 to help others feel less alone. She speaks at conferences like the Wellstone Center
Dystroglycanopathy Patient & Family Conference, Speak Foundation, and contributes to the Muscular Dystrophy Association’s peer connection programs and community storytelling (“Quest”) to raise awareness, build community, and support ongoing research. She is an an Advisory Board member of CureLGMD2i and also an MDA Advocacy Captain.
A licensed therapist, Grove is active as a national speaker and consultant, with her expertise sought by pharmaceutical companies and in projects addressing mental health, chronic illness, Muscular Dystrophy, HIV advocacy, and relationship issues.
Not available to join live on December 2nd ? Register to receive an email when the webinar is available to view on-demand.
If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.
Thank you to our supporter:
