Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Daily Living: Living a Full Life

July 22nd, 2025
3pm - 4:30pm EST
Live, Virtual Webinar

Join us for a powerful and informative webinar focused on showcasing how individuals with neuromuscular disease define and pursue fulfillment, purpose, and happiness. This webinar will provide viewers with the opportunity to hear directly from members of the neuromuscular disease community through a facilitated discussion.

Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support.

What We’ll Cover:

Highlight diverse definitions of a “full life”
Explore key areas of life satisfaction
Address emotional and mental health
Encourage community connection

Meet Our Presenter:

Deidre Devier, MSW, PhD
Dr. Devier was trained in behavioral neuroscience at the University of New Mexico and in the Geriatric Psychiatry Department at Columbia University where she studied aging and cognitive decline associated with neurodegenerative disorders. She conducted research at the Columbia University Alzheimer’s Disease Research Center and the New York State Psychiatric Institute. After completing her postdoctoral fellowship, she joined the faculty in the LSUHSC – NO Department of Neurology as an integral member of the Neurology Clinic and the Brain and Behavior Research Program. Dr. Devier is actively involved in the LSUHSC – NO Muscular Dystrophy Association MD and ALS clinics, working with patients and their family members through the intricacies of living with and receiving care for their neurodegenerative disorders.

Not available to join live on July 22^nd? Register to receive an email when the webinar is available to view on-demand.

If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.

Faculty: