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We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Webinar: Understanding Clinical Trials and Natural History Studies

June 11th, 2025
4:00 - 5:00pm EST
Live, Virtual Webinar

Join us for a powerful and informative webinar focused on Understanding Clinical Trials and Natural History Studies! Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support.

What We’ll Cover:

  • The purpose and design of clinical trials in neuromuscular disease research. 
  • The role of natural history studies in advancing treatment options and understanding disease progression.
  • Highlight key considerations for participants in clinical trials, including eligibility, risks, and benefits. 
  • Tools to find and evaluate clinical trial opportunities
  • Live Q&A with the presenter

Meet Our Presenter:
Han C. Phan, MD
Dr. Phan is the Founder, CEO, Head of Research, and Principal Investigator for Rare Disease Research, LLC. She is a Pediatric Neurologist located in Georgia.

Watch On Demand

Who Should Attend?
This webinar is ideal for:

  • Individuals living with neuromuscular conditions
  • Family members and caregivers
  • Anyone seeking to learn more about Clinical Trials and Natural History Studies

Why Attend?
Get reliable, up-to-date information in an accessible format—plus a chance to ask your questions directly to experts in the field. Reserve Your Spot Today – It's Free!
Click below to register and receive your access link and reminders.

https://zoom.us/webinar/register/WN_oWpIHqpuQpmodFB3CPJb_w

Not available to join live on June 11th? Register to receive an email when the webinar is available to view on-demand. 

If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org. 

Faculty: 
Dr. Phan Headshot
Han C. Phan, MD
Founder, CEO, Head of Research, and Principal Investigator

Rare Disease Research, LLC


Thank you to our supporters:

Edgewise TherapeuticsMitsubishi Tanabe Pharma, AmericaRegeneron logo