Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Daily Living

Amyotrophic Lateral Sclerosis Care Guidelines The guidelines, released by the American Academy of Neurology, are based on evidence that they’re effective in caring for people with ALS.
Congenital Muscular Dystrophy Care Guidelines The first-ever CMD care guidelines focus on the latest developments in diagnosis, treatment and medical management of these rare diseases.
Duchenne Muscular Dystrophy Care Guidelines December 2009 From the DMD Care Considerations Working Group, a comprehensive set of clinical care recommendations for the diagnosis and management of DMD
Everybody’s Different, Nobody’s Perfect A colorful, easy-to-read booklet in English and Spanish helps young children understand muscular dystrophy and related muscle-debilitating diseases.
Everyday Life with ALS: A Practical Guide In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.
Exercising with a Muscle Disease Insights from research, medicine, exercise experts and people with neuromuscular diseases. Includes information on recommended exercises for those with a neuromuscular disease, as well as their caregivers.
Learning to Live with Neuromuscular Disease: A Message for Parents This booklet is for parents who've recently learned their child has a progressive muscle disease. Topics include: facing your feelings, the other children in the family, single parenting, reaching out, communicating with other relatives and teaching independence.
Pregnancy and Childbirth with Neuromuscular Disease A special report examining issues that arise for expectant mothers with neuromuscular diseases. Includes information about disease-specific complications, and stories from women with neuromuscular diseases who gave birth.
Preparing for Emergencies: A Checklist for People with Neuromuscular Diseases People can prepare for home emergencies by completing the checklists and filling in the essential information in this brochure.
Spinal Muscular Atrophy Care Guidelines The SMA Standard of Care Committee released a “consensus statement” on clinical care that sets guidelines aimed at standardizing the management of this disease.
Travis: I Got Lots of Neat Stuff (bilingual) Written by the mother of a boy with muscular dystrophy, this simple picture book helps children realize that life can be fun even with muscular dystrophy or related muscle-debilitating diseases.