FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Research and Care Webinar: Spotlight on New Research

January 21st, 2026
11:00AM ET
Live, Virtual Webinar

Don't miss next week’s Research and Care webinar focused on Spotlighting New Research in Neuromuscular disease, funded by MDA.  Whether you're a person living with a neuromuscular disease, a caregiver, or an advocate, this webinar will offer valuable insights and information on how MDA is moving the neuromuscular research space forward.

This webinar series is designed to provide timely, transparent, and accessible communication about scientific advances, clinical trials, and MDA-supported research. This will be an opportunity for meaningful connection between researchers and the MDA community.

Register

Meet Our Presenters:

Brian Lin, PhD- MDA Research Portfolio Director

Chad Heatwole, MD, MS – University of Rochester Medical Center

Charlotte Sumner, MD – Johns Hopkins Medicine

Matthew Nolan, PhD – Harvard University, Mass General Research Institute

Not available to join live on January 21st, 2026? Register to receive an email when the webinar is available to view on-demand.  If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org. 

Faculty: 
Chad Heatwole, MD, MS

University of Rochester Medical Center

Charlotte Sumner, MD

Johns Hopkins Medicine

Matthew Nolan, PhD

Harvard University, Mass General Research Institute