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MDA Engage: Mitochondrial Myopathy Symposium
March 6, 2021
Time: 11:00am - 4:45pm Eastern Time
Virtual, online event
There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.
Agenda (Times are in Eastern Time)
- Welcome and MDA Mission Spotlight (11:00am)
- Patient Care Standards for Mitochondrial Care (11:15am)
- Dr. Amel Karaa, Assistant Professor Harvard Medical School, Director of Mitochondrial Disease Program, Massachusetts General Hospital
- Endocrine Disorders in Mitochondrial Myopathies(12:20pm)
- Dr. Shana McCormack, MTR, Scientific Director of the Neuroendocrine Center in the Division of Endocrinology and Diabetes, Children's Hospital of Philadelphia
- The Facts about Palliative Care (1:30pm)
- Dr. Carly Levy, Associate Professor of Pediatrics, Director, Hospice and Palliative Care Program, Nemours/Alfred I. duPont Hospital for Children
- You Got it From Your Mother...Or Maybe Not: The Complexities of Mitochondrial Genetics (2:30 pm)
- Tara Jones, MS, LCGC, Cedars Sinai
- Exercise for the Exercise Intolerant ( 3:20pm)
- Jean Flickinger, PT, DPT, PC, Children’s Hospital of Philadelphia
- Ophthalmic Manifestations in Mitochondrial Myopathies (4:20pm)
- Dr. Tomas Aleman, Associate Professor of Ophthalmology at the Hospital of the University of Pennsylvania
For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)
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