MDA Clinical & Scientific Conference, March 8-11, Orlando, FL - Join Us In Person or Virtually

Care and Connection That Matter

Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.

MDA Engage Community Education Seminar: Utah

Friday, May 17, 2019MDA Engage Logo
Registration & Breakfast: 8:30 – 9:30 AM
Event: 9:00 AM – 3:30 PM (lunch included)
Social Hour: 3:30 -6:00 PM

Event Chair: Dr. Russell Butterfield, MD., PhD., University of Utah Medical Center

Event Location:
Loveland Living Planet Aquarium
12033 Lone Peak Parkway
Draper, UT  84020

There is no cost to attend the event, however, registration is required.

Registration has Closed

Agenda

  • Keynote Presentation – Genetic Medicine and the Future of Neuromuscular Disease
    • Dr. Russell Butterfield, MD., PhD., University of Utah Medical Center
  • Specialty Topic featuring TRAILS (Technology Recreation Access Independence Lifestyle Sports)
    • Dr. Jeffery Rosenbluf, MD., PhD., University of Utah Medical Center
    • Tanja Kari, MS
  • Genetics Overview
    • Tara Newcomb, MS, LCGC
  • Updates on Clinical Trials
    • Dr. Russell Butterfield, MD., PhD., University of Utah Medical Center
  • How to get the most from your Care Center
    • Meagan Bernatz, APRN, CPNP
  • Clinical Panel Q and A
    • Grace Gough, MS, RD
    • Tara Newcomb, MS, LCGC
    • Sarah Gallant, MS, CCC-SLP
    • Melissa Mcintyre, DPT
    • Amelia Wilson, DPT
    • Meagan Bernatz, APRN, CPNP
    • James Rogers, BSN, RN
    • Russell Butterfield, PhD., MD
    • Aubrey Isaacs, RRT
    • Taylor Berhow, CSW, MPA

 

MDA Thanks our sponsors:

  • Sanofi Genzyme
  • AveXis

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)