Care and Connection That Matter

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MDA Engage Community Education Seminar: Connecticut

Saturday, May 11, 2019
Registration & Breakfast: 8:00-9:00 AM
Event: 9:00 AM-3:45 PM (lunch included)
Social Hour: 3:45-4:45 PM

Event Chair: Dr. Gyula Acsadi, Pediatric Neurologist, MDA Care Center Director, Connecticut Children’s Medical Center

Event Location:
Red Lion Hotel
100 Berlin Rd.
Cromwell, CT 06416

There is no cost to attend the event, however, registration is required.

Agenda

Keynote Presentation – Clinical Trial Review
- Dr. Gyula Acsadi, Pediatric Neurologist, MDA Care Center Director, Connecticut Children’s Medical Center
Mental Health Considerations
- Lindsay Pratt-Bluemie, LCSW, Hospital for Special Care
Best Practices in Clinical Care
- Dr. Cristian Ionita, Pediatric Neurologist & Director of Yale New Haven Children’s Hospital
Genetics and translational research in Neuromuscular Diseases
- Monkol Lek, PhD., Yale School of Medicine; Lek Lab
A Different Hand to Play: A Guide for Parents of Children with Special Needs
- Jacqueline Clark, CLTC., Long-Term Care Planning Professional
Home Accessibility & Safety
- Cliff Bullock, Bullock Access
- Amie Bullock, Bullock Access
MDA Spotlight
- Jessica Davie, MDA

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)