FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Care and Connection That Matter

Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.

MDA Engage Community Education Seminar

Saturday, November 7, 2020MDA Engage Logo
Time: 9:00am - 1:15pm ET / 8:00am - 12:15pm CT
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team. For all other questions, please reach out to mdaengage@mdausa.org.

Watch Recorded Seminar Here

Agenda

  • Novel Therapies (9:05am ET)
    • Dr. Manuela Corti, PT, PHD Associate Professor, Powell Center for Rare Disease Research and Therapy, University of Florida
  • Everything You Need To Know About Speech Therapy(10:10am ET)
    • Sarah Reising, M.S., CCC-SLP, Mayo Clinic
  • Genetic Testing (10:55am ET)
    • Lee Kugelmann, MMSc, GC, Norman Fixel Institute for Neurological Diseases at UF Health, University of Florida
  • MRI Methods of Neuroimaging Research to improve diagnosis and understand disease progression(11:40am ET)
    • Dr. Richard Dortch, PhD, Research Assistant Professor, Vanderbilt University Institute of Imaging Science
  • Legal and Financial Resources (12:25pm ET)
    • Jonathan Martinis, Southeast ADA Center-Burton Blatt Institute

 

Thank you to our supporters:

  • Biogen
  • Genentech
  • Numotion Foundation

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)