FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Care and Connection That Matter

Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.

MDA Engage Community Education Seminar

October 17, 2020MDA Engage Logo
Time: 9:00am - 2:00pm CT / 10:00am - 3:00pm ET
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team. For all other questions, please reach out to mdaengage@mdausa.org.

Watch Recorded Seminar Here

Event Chair: Dr. Amanda Witt, University of Mississippi Medical Center

  • Best Practices in Clinical Care (9:05am CT)
    • Dr. Amanda Witt, University of Mississippi Medical Center
  • What is Genetic Testing (10:00am CT)
    • Dana Goodloe, MPH, MS, CGC, The University of Alabama at Birmingham
  • Canine Assistive Services (10:50am CT)
    • Diana Struthers, Family Member
  • Expert Panel On Everything You Need To Know About Adaptive Equipment, Exercise for Neuromuscular Disease and Durable Medical Equipment (11:40amCT)
    • Janna Knickerbocker. OT
    • Kim Carter, PT, ScDPT, NCS
    • Will Mattern, ATP
  • Clinical Trials and Research Updates in Neuromuscular Care (1:00pmCT)
    • Dr. Saurabh Shukla, University of Mississippi Medical Center

 

Thank you to our supporters:

  • Biogen
  • Genentech
  • Numotion Foundation

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)