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We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Spinal Muscular Atrophy (SMA)

November 14, 2020MDA Engage Logo
Time: 11:00am - 4:30pm ET / 10:00am - 3:30pm CT
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team. For all other questions, please reach out to mdaengage@mdausa.org.

Watch recorded seminar

Event Chair: Dr. Marcia Felker, Riley Children's Health


  • Welcome and MDA Mission Spotlight (11:00am ET)
  • Keynote Presentation –Overview of SMA and Best Practices for Care (11:15am ET)
    • Dr. Marcia Felker, Neurologist, Indiana University Health Riley Children's Health
  • Update in Research and Clinical Trials (12:05pm ET)
    • Dr. Arpita Lakhotia, Pediatric Neurologist, Norton Children’s Hospital, University of Louisville Hospital
  • Drug Development Roundtable(12:45pm ET)
  • Specialty Care and SMA: Cardiac and Respiratory (1:35pm ET)
    • Dr. Larry Markham, Pediatric Cardiologist, Indiana University Health Riley Children's Health
    • Dr. Sandeep Puranik, Pediatric Pulmonologist, Indiana University Health Riley Children's Health
  • Genetic Testing and What it Means (2:35pm ET)
    • Katelyn Payne, CGC, Indiana University Health Riley Children's Health
  • Ask the Experts Panel: (3:05pm ET)
    • Niki Hybben, PT, Indiana University Health Riley Children's Health
    • Shelley Coleman Casto, MS, OTR/L, CPST - Nationwide Children's
    • Jessica Almanza, RD, Ann and Robert H. Lurie Children’s Hospital of Chicago
  • Navigating Insurance (3:45pm ET)
    • Sarah Stoney, MSW,LSW, The Children’s Hospital of Philadelphia
  • Advocacy for You (4:15pm ET)
    • Brittany Hernandez, MDA


Thank you to our supporters:

  • Biogen
  • Genentech
  • Cytokinetics

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)

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