Innovations in Care

We provide access to support and programs that empower the lives of people living with neuromuscular diseases.

MDA Engage SMA Symposium

Friday, April 12th, 2019
Registration: 8:30-9:15am
Event: 9:15am-4:00pm (lunch included)
Event Chair: Dr. Richard Finkel, Nemours Children’s Hospital

There will be a social hour at the Rosen Center Hotel the evening of Thursday, April 11th.

Event Location:
Rosen Center Hotel
9840 International Dr
Orlando, FL 32819
Google Maps

There is no cost to attend the event, however, registration is required.

Keynote Speaker: Dr. Richard Finkel, Chief of Neurology, Nemours Children’s Hospital & MDA Care Center Director

Research, Clinical Trials and Genetic Testing Considerations in SMA
- Richard S. Finkel, MD - Nemours Children’s Hospital
MDA Spotlight
- Blake Lennon - Muscular Dystrophy Association
Best Practices in Clinical Care
- Kelly Wydronkowski - Nemours Children’s Hospital
- Matthew Civitello, MPT - Nemours Children’s Hospital
- Julie Wells MS, OTR/L, ATP, C/NDT - Nemours Children’s Hospital
- Aledie Amariah Navas Nazario, MD - Nemours Children’s Hospital
- Kelly Bell MS, RDN, LDN - Nemours Children’s Hospital
Scoliosis and Contractures Management in SMA
- Ryan M. Ilgenfritz, MD - Nemours Children’s Hospital
Family Round Table
- Moderated by Richard S. Finkel, MD - Nemours Children’s Hospital
Drug Development Round Table
- Moderated by Richard S. Finkel, MD - Nemours Children’s Hospital

A room block is available at the Rosen Center Hotel

Available the evening of 4/11 & 4/12
Room rate of $119 plus tax (single/double). $20 per additional person.
To make a reservation, guests should call 1-800-204-7234 and request a room under the group of “Muscular Dystrophy Association”. The room rate is good for reservations made before March 28th. Reservations can also be made online via clicking here.