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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage SMA Symposium

Friday, April 12th, 2019
Registration: 8:30-9:15am
Event: 9:15am-4:00pm (lunch included)
Event Chair: Dr. Richard Finkel, Nemours Children’s Hospital

There will be a social hour at the Rosen Center Hotel the evening of Thursday, April 11th.

Event Location:
Rosen Center Hotel
9840 International Dr
Orlando, FL 32819
Google Maps

There is no cost to attend the event, however, registration is required.

Registration has Closed

Keynote Speaker: Dr. Richard Finkel, Chief of Neurology, Nemours Children’s Hospital & MDA Care Center Director

  • Research, Clinical Trials and Genetic Testing Considerations in SMA
    • Richard S. Finkel, MD - Nemours Children’s Hospital
  • MDA Spotlight
    • Blake Lennon - Muscular Dystrophy Association
  • Best Practices in Clinical Care
    • Kelly Wydronkowski - Nemours Children’s Hospital
    • Matthew Civitello, MPT - Nemours Children’s Hospital
    • Julie Wells MS, OTR/L, ATP, C/NDT - Nemours Children’s Hospital
    • Aledie Amariah Navas Nazario, MD - Nemours Children’s Hospital
    • Kelly Bell MS, RDN, LDN - Nemours Children’s Hospital
  • Scoliosis and Contractures Management in SMA
    • Ryan M. Ilgenfritz, MD - Nemours Children’s Hospital
  • Family Round Table
    • Moderated by Richard S. Finkel, MD - Nemours Children’s Hospital
  • Drug Development Round Table
    • Moderated by Richard S. Finkel, MD - Nemours Children’s Hospital

A room block is available at the Rosen Center Hotel

  • Available the evening of 4/11 & 4/12
  • Room rate of $119 plus tax (single/double).  $20 per additional person.
  • To make a reservation, guests should call 1-800-204-7234 and request a room under the group of “Muscular Dystrophy Association”.  The room rate is good for reservations made before March 28th. Reservations can also be made online via clicking here.

Thank you to our supporters

  • AveXis
  • Biogen
  • Cytokinetics
  • Genentech

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)