Keynote Speaker: Dr. Charles A. Thornton, Neurologist at University of Rochester
Research Panel
Opportunities to obtain better treatments in myotonic dystrophy
Current research studies on myotonic dystrophy
Presenters:
Dr. Charles Thornton, Professor of Neurology & Director, Wellstone Muscular Dystrophy Specialized Research Center
Jeanne Dekdebrun, Research Coordinator University of Rochester Medical Center
Best Practices in Clinical Care
Clinical Care in DM1
Presenter: Dr. Chad Heatwole, University of Rochester Medical Center
DM2 with a genetic component
Presenter: Dr. Johanna Hamel, Department of Neurology University of Rochester Medical Center
Clinical care for pediatrics
Presenter: Dr. Emma Ciafaloni, Department of Neurology University of Rochester Medical Center
Physical therapy and exercise for individuals with Myotonic Dystrophy
Presenter: Dr. Katy Eichinger, PT, PhD, NCS, University of Rochester
Considerations for families: working with care agencies
Linnaea Nifong, LMSW UR Medicine- Strong Memorial Hospital
ABLE Accounts: what you need to know
Evelyn Exman - Planning Specialist, Future Care Planning Services
MDA Spotlight
Sarah Fewkes, Care and Clinical Services Specialist- MDA
Overnight Accommodations
Discounted room rates of $142 per night (plus fees and taxes) are available at the Hilton Garden Inn at 30 Celebration Dr. in Rochester, NY. Discounted rooms are available until 10/25/19. To reserve one of these rooms, please click here.
For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)