We provide access to support and programs that empower the lives of people living with neuromuscular diseases.
MDA Engage: Mitochondrial Myopathy Symposium
March 6, 2021
Time: 11:00am - 4:45pm Eastern Time
Virtual, online event
There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.
Patient Care Standards for Mitochondrial Care (11:15am)
Dr. Amel Karaa, Assistant Professor Harvard Medical School, Director of Mitochondrial Disease Program, Massachusetts General Hospital
Endocrine Disorders in Mitochondrial Myopathies(12:20pm)
Dr. Shana McCormack, MTR, Scientific Director of the Neuroendocrine Center in the Division of Endocrinology and Diabetes, Children's Hospital of Philadelphia
The Facts about Palliative Care (1:30pm)
Dr. Carly Levy, Associate Professor of Pediatrics, Director, Hospice and Palliative Care Program, Nemours/Alfred I. duPont Hospital for Children
You Got it From Your Mother...Or Maybe Not: The Complexities of Mitochondrial Genetics (2:30 pm)
Tara Jones, MS, LCGC, Cedars Sinai
Exercise for the Exercise Intolerant ( 3:20pm)
Jean Flickinger, PT, DPT, PC, Children’s Hospital of Philadelphia
Ophthalmic Manifestations in Mitochondrial Myopathies (4:20pm)
Dr. Tomas Aleman, Associate Professor of Ophthalmology at the Hospital of the University of Pennsylvania
For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)