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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Limb Girdle Muscular Dystrophy (LGMD) Symposium

June 5, 2021MDA Engage Logo
Time: 11:00am - 4:30pm Eastern Time
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

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Agenda

  • The Progression of the Heart in LGMD (11:10am ET)
    • Dr. Michelle Kittleson, PhD, Director of Post Graduate Medical Education in Heart Failure and Transplantation at Cedars-Sinai Heart Institute, Assistant Clinical Professor of Medicine/Cardiology at the David Geffen School of Medicine at the University of California, Los Angeles
  • Waves of the Future: Clinical Studies and Treatment Trials for LGMD (11:40am ET)
    • Dr. Peter Kang, Director, Paul and Sheila Wellstone Muscular Dystrophy Center, Vice Chair of Research, University of Minnesota
  • Mission Spotlight (12:30pm ET)
  • Exercise Habits for a Happier You (1:00pm ET)
    • Amy Yotty, PT, DPT, NCS, University of Iowa
  • Understanding Genetics: A foundation for Families (2:00pm ET)
    • Stephanie Bivona, CGC, University of Miami, Miller School of Medicine
  • Characteristics of Pulmonary Functions in LGMD (3:00pm ET)
    • Dr. Erin MacKintosh, Pediatric Pulmonologist, Seattle Children’s Hospital

Check back for updates to the agenda

 

Thank you to our supporter:

  • Sarepta

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)