Innovations in Care

We provide access to support and programs that empower the lives of people living with neuromuscular diseases.

2019 MDA Engage Duchenne Muscular Dystrophy Symposium

Saturday, November 9, 2019MDA Engage Logo
Symposium: 9:00 AM – 3:30 PM (lunch provided)
Social Event: 3:30 - 4:30 PM

Event Location:
Hilton Sacramento Arden West
2200 Harvard Street, Sacramento, CA 95811

Event Chair: Erik K. Henricson, Ph.D., M.P.H., UC Davis Health

There is no cost to attend the event, however, registration is required.

Registration has Closed

  • Research & Clinical Trials
    • Craig McDonald, MD Director, Neuromuscular Disease Programs& Clinic; University of California, Davis
    • Erica Goude, Clinical Research Manager, Neuromuscular Research Center; University of California, Davis
    • Erik Henricson, PhD, MPH Associate Director for Clinical Research, Department of PM&R Neuromuscular Research Center, University of California, Davis
  • Best Practices In Clinical Care
    • Sanjay Jhawar, MD Pediatric Pulmonology, University of California, Davis
    • Jonathan “Yoni” Dayan, MD Pediatric Cardiology, University of California, Davis
    • Prasanth Surampudi MD Endocrinology, University of California, Davis
  • Genetic Testing
    • Stanley Nelson, MD Professor and Vice Chair of Human Genetics, University of California, Los Angeles
  • Drug Roundtable
  • Pediatric to Adult Transition
    • Lisa Harris-Chavez, LCSW (University of California, Davis)

Overnight Accommodations
Individuals or families that are expecting to travel for the Symposium, or wish to stay overnight at the Hilton Sacramento Arden West, can do so at a discounted rate. If you would like to view the rooms available and reserve your room today, please click here. Guests can also call 1-800-HILTONS (445-8667) and mention group rate code “MUS” to make their guest room reservation. If an accessible room is needed, following your online reservation, please call 1-800-HILTONS (445-8667). Discounted rooms are available until October 18th.

Thank you to our supporters

  • Audentes
  • Genentech
  • PTC Therapeutics
  • Solid Biosciences
  • Wave Life Sciences

For questions reach out to: | 1-833-ASK-MDA1 (1-833-275-6321)