Innovations in Care

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MDA Engage: Amyotrophic Lateral Sclerosis (ALS) Symposium

May 12-13, 2021
Time: 3:00-6:00pm Eastern Time
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

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Agenda

5/12:

ALS Update 2021: Signs of Progress, Reasons for Hope (3:15pm ET)
- Keynote Speaker: Dr. Richard Bedlack, MD, PhD, MS Professor of Neurology, Director of the Duke ALS Clinic, Duke University
Drug Development Roundtable with Q &A (4:20pm ET)
- Moderated by: Dr. Bedlack, MD, PhD, MS Professor of Neurology, Director of the Duke ALS Clinic, Duke University
The Role of Genetics and ALS (5:10pm ET)
- Ellie Harrington MS, CGC, Columbia University Medical Center
MDA Mission Spotlight and Closing (5:45pm ET)
- Nicole Petrouski, MDA

5/13:

Speech Language Pathologist Care Considerations for ALS (3:10pm ET)
- Paige Nalipinski MA, CCC, SLP, Massachusetts General Hospital
Everyday ALS Living Tips (4:15pm ET)
- Ginna Gonzalez, DNP, ALS Center University of Miami
- Matt Caraher, DPT, University of Miami Health System
- Adriana Lopez, OT, ALS Center University of Miami
Cognitive and Behavior Syndromes in ALS (5:25pm ET)
- Dr. Catherine Loman-Hoerth, PhD, Director, ALS Center at UCSF Medical Center
National ALS Registry (6:15pm ET)
- Jaime Raymond, MPH, Agency for Toxic Substances and Disease Registry (ATSDR

Please check back for updates to the agenda