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Innovations in Care

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MDA Engage: Amyotrophic Lateral Sclerosis (ALS) Symposium

May 12-13, 2021MDA Engage Logo
Time: 3:00-6:00pm Eastern Time
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at For all other questions, please reach out to

Register here for 5/12 Symposium

Register here for 5/13 Symposium
(**It will be a different log in link for each day. We encourage you to register for both days so you can have access to both live seminars.)



  • ALS Update 2021: Signs of Progress, Reasons for Hope
    • Keynote Speaker: Dr. Richard Bedlack, PhD, MS Professor of Neurology, Director of the Duke ALS Clinic, Duke University
  • Drug Development Roundtable with Q &A
    • Moderated by: Dr. Bedlack PhD, MS Professor of Neurology, Director of the Duke ALS Clinic, Duke University
  • The Role of Genetics and ALS
    • Ellie Harrington MS, CGC, Columbia University Medical Center
  • MDA Mission Spotlight and Closing
    • Nicole Petrouski, MDA


  • Speech Language Pathologist Care Considerations for ALS
    • Paige Nalipinski MA, CCC, SLP, Massachusetts General Hospital
  • Everyday ALS Living Tips
    • Ginna Gonzalez, DNP, ALS Center University of Miami
    • Matt Caraher, DPT, University of Miami Health System
    • Adriana Lopez, OT, ALS Center University of Miami
  • Cognitive and Behavior Syndromes in ALS
    • Dr. Catherine Loman-Hoerth, PhD, Director, ALS Center at UCSF Medical Center
  • ALS Registry
    • Reshma Punjami, MPH, Agency for Toxic Substances and Disease Registry (ATSDR)

Please check back for updates to the agenda


Thank you to our supporters:

  • Alexion
  • Amylyx
  • Apellis
  • Biogen