FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Care and Connection That Matter

Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.

MDA Engage Community Education Seminar: Washington

Saturday, September 28, 2019MDA Engage Logo
Registration: 9:00am - 9:30am
Event: 9:30am - 3:30pm
Social hour: 3:30pm - 4:30pm

Event Chair: Dr. Fawn Leigh, Director, MDA Pediatric Care Center Director, Seattle Children’s Hospital

Event Location:
Meydenbauer Center
11100 NE 6th St.
Bellevue, WA 98004

There is no cost to attend the event, however, registration is required.

Registration has closed

Keynote Speaker: Dr. Fawn Leigh, MDA Care Center Director, Seattle Children’s Hospital

  • Keynote Presentation- Genetic Testing
    • Fawn Leigh, MD – Seattle Children’s Hospital
  • Research and Clinical Trials
    • Jeffrey S. Chamberlain, Ph.D. – University of Washington Medicine
  • Insurance and Finance
    • Margarette Ramirez – Seattle Children’s Hospital Administration
  • Best Practices in Clinical Care
    • Mandy Striegl – Seattle Children’s Hospital Pulmonary Care
    • Maida Chen – Seattle Children’s Hospital Pulmonary Care
  • Panel Discussion- Rehab, DME, Traveling suggestions and School Accommodations
    • Kevin Roth – Numotion
    • Cherie Duval White – Seattle Children’s Hospital
  • PT/OT Techniques and Clinic Transitions
    • Leslie Vogel, PT – Seattle Children’s Hospital
    • Suzi Driscoll, OT - Seattle Children’s Hospital

Thank you to our supporters:

  • Sanofi Genzyme
  • Genentech

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)