Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage Community Education Seminar: Utah

Friday, May 17, 2019MDA Engage Logo
Registration & Breakfast: 8:30 – 9:30 AM
Event: 9:00 AM – 3:30 PM (lunch included)
Social Hour: 3:30 -6:00 PM

Event Chair: Dr. Russell Butterfield, MD., PhD., University of Utah Medical Center

Event Location:
Loveland Living Planet Aquarium
12033 Lone Peak Parkway
Draper, UT  84020

There is no cost to attend the event, however, registration is required.

Register here by May 15th

Agenda

  • Keynote Presentation – Genetic Medicine and the Future of Neuromuscular Disease
    • Dr. Russell Butterfield, MD., PhD., University of Utah Medical Center
  • Specialty Topic featuring TRAILS (Technology Recreation Access Independence Lifestyle Sports)
    • Dr. Jeffery Rosenbluf, MD., PhD., University of Utah Medical Center
    • Tanja Kari, MS
  • Genetics Overview
    • Tara Newcomb, MS, LCGC
  • Updates on Clinical Trials
    • Dr. Russell Butterfield, MD., PhD., University of Utah Medical Center
  • How to get the most from your Care Center
    • Meagan Bernatz, APRN, CPNP
  • Clinical Panel Q and A
    • Grace Gough, MS, RD
    • Tara Newcomb, MS, LCGC
    • Sarah Gallant, MS, CCC-SLP
    • Melissa Mcintyre, DPT
    • Amelia Wilson, DPT
    • Meagan Bernatz, APRN, CPNP
    • James Rogers, BSN, RN
    • Russell Butterfield, PhD., MD
    • Aubrey Isaacs, RRT
    • Taylor Berhow, CSW, MPA

 

MDA Thanks our sponsors:

  • Sanofi Genzyme
  • AveXis

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)