FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Care and Connection That Matter

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MDA Engage Community Education Seminar

September 19, 2020MDA Engage Logo
Time: 9:00am - 2:00pm ET / 8:00am - 1:00pm CT
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team. For all other questions, please reach out to mdaengage@mdausa.org.

Watch Recorded Seminar Here

Agenda

  • Updates in Neuromuscular Research and Clinical Trials (9:05am ET)
    • Dr. Terry Heiman-Patterson, Neurologist, Temple University
  • Genetics : Why it’s Important to know (10:00am ET)
    • Brianna Gross, MS, CGC, Children’s Hospital of Philadelphia
  • Keynote Presentation: Multidisciplinary clinic, why it is important for your care (11:00am ET)
    • Dr. Justin Kwan, Neurologist, Temple Neurology Associates
  • Becoming an empowered self-advocate (11:55am ET)
    • Brittany Hernandez, Muscular Dystrophy Association
  • Physical Therapy To Get You Moving (12:40pm ET)
    • Jennifer Jones, PT, DPT, Children’s Hospital of Philadelphia

 

Thank you to our supporters:

  • Biogen
  • Genentech
  • Numotion Foundation

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)