FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Care and Connection That Matter

Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way.

MDA Engage Community Education Seminar

August 15, 2020MDA Engage Logo
Time: 9:00am - 2:00pm ET / 8:00am - 1:00pm CT
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnterships team. For all other questions, please reach out to mdaengage@mdausa.org.

watch recorded seminar here

Agenda

  • Best Practices in Clinical Care (9:10 am ET)
    • Dr. Cuixia Tian, Pediatric Neurologist, Assistant Professor, UC Dept. of Pediatrics, Cincinnati Children’s Hospital
  • Genetic Testing in NMD ( 10:00am ET)
    • Chinmayee Nagaraj, CGC, Cincinnati Children’s Hospital
  • Pediatric to Adult Transitional Care (11:00am ET)
    • Wendy Chouteau, DNP, APRN, FNP-BC, Cincinnati Children’s Hospital
  • Research and Clinical Trial review (12:00pm ET)
    • Dr. Hani Kushlaf, Neurologist, University of Cincinnati Medical Center
  • Mental Health Considerations for Caregivers (1:00pm ET)
    • Danielle Graef, PhD., Assistant Professor in Behavior Medicine and Clinical Psychology, Cincinnati Children’s Hospital

 

Thank you to our supporters:

  • Biogen
  • Genentech
  • Numotion Foundation

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)