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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage Community Education Seminar

August 22, 2020MDA Engage Logo
Time: 9:00am - 2:00 pm CT / 10:00am - 3:00pm ET
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnterships team. For all other questions, please reach out to mdaengage@mdausa.org.

Watch Recorded Seminar Here

Agenda

  • Best Practices in Clinical Care (9:05am CT)
    • Dr. Rosario Maria Riel-Romero, Child Neurologist, Professor of Neurology, Louisiana State University School of Medicine
  • Keynote: Research Updates (10:00am CT)
    • Dr. Joaquin Wong, Child Neurologist, Assistant Professor of Child Neurology at LSU Health New Orleans
  • Genetic Testing (11:00am CT)
    • Roa Sadat, MMSc, CGC, Pediatric Genetic Counselor, Texas Children’s Hospital
  • Navigating School Supports: IEPs, 504s, and Related Resources for Students and Parents (12:00pm CT)
    • Jodie Krause, MA, CBIS, Brain Injury Educational Coordinator, Children’s Hospital of Colorado
  • Ask the Experts Panel (1:00pm CT)
    • Brittany Green, PT, DPT, BSPTS, CI, Texas Children’s Hospital
    • Grace Schmidt, RD, MS, LD, Texas Children’s Hospital

 

Thank you to our supporters:

  • Biogen
  • Genentech
  • Numotion Foundation

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)