Care and Connection That Matter

MDA Engage Community Education Seminar: Delaware

Saturday, November 17, 2018
Registration and breakfast: 8:30am – 9:30am
Event: 9:30am – 3:30pm (lunch and afternoon snack included)

Event Co-Chairs

• Dr. Thomas Crawford, MD, Professor, The Johns Hopkins University School of Medicine, Department of Neurology and MDA Care Center Director at Johns Hopkins Hospital
• Dr. Mena Scavina, DO, Nemours/Alfred I. duPont Hospital for Children, Department of Pediatric Neurology, MDA Care Center Director at Nemours/Alfred I. duPont Hospital for Children

Event Location:
Doubletree by Hilton Hotel Wilmington
4727 Concord Pike, Wilmington, Delaware

There is no cost to attend the event, however, registration is required.
Register by November 15th at https://www.etouches.com/delaware2018

Keynote Address:

• Best Clinical Practices in the MDA Care Center
  • Dr. Thomas Crawford, MD, Professor, The Johns Hopkins University School of Medicine, Department of Neurology and MDA Care Center Director at Johns Hopkins Hospital

Covered Topics Include:

• The Clinical Trial Experience – A Family Panel, Moderated by Dr. Mena Scavina
  • MDA families
  • Dr. Mena Scavina, DO, Nemours/Alfred I. duPont Hospital for Children
• Considerations for Families and Caregivers
  • Theresa Cox, Clinic Coordinator at Johns Hopkins Hospital
• Taking Care of Your Mental Health
  • Mary Holt-Paolone, MSRN, Clinical Nurse Counselor at Temple University Hospital
• Genetics 101: What’s all the Hype?
  • Emily Glogowski, MSC, MS, LCGC, GeneDx

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)

Special Thanks to our Event Supporter: