We provide access to support and programs that empower the lives of people living with neuromuscular diseases.
MDA Engage Community Education Seminar: Delaware
Saturday, November 17, 2018
Registration and breakfast: 8:30am – 9:30am
Event: 9:30am – 3:30pm (lunch and afternoon snack included)
Event Co-Chairs
Dr. Thomas Crawford, MD, Professor, The Johns Hopkins University School of Medicine, Department of Neurology and MDA Care Center Director at Johns Hopkins Hospital
Dr. Mena Scavina, DO, Nemours/Alfred I. duPont Hospital for Children, Department of Pediatric Neurology, MDA Care Center Director at Nemours/Alfred I. duPont Hospital for Children
Event Location:
Doubletree by Hilton Hotel Wilmington
4727 Concord Pike, Wilmington, Delaware
Dr. Thomas Crawford, MD, Professor, The Johns Hopkins University School of Medicine, Department of Neurology and MDA Care Center Director at Johns Hopkins Hospital
Covered Topics Include:
The Clinical Trial Experience – A Family Panel, Moderated by Dr. Mena Scavina
MDA families
Dr. Mena Scavina, DO, Nemours/Alfred I. duPont Hospital for Children
Considerations for Families and Caregivers
Theresa Cox, Clinic Coordinator at Johns Hopkins Hospital
Taking Care of Your Mental Health
Mary Holt-Paolone, MSRN, Clinical Nurse Counselor at Temple University Hospital
Genetics 101: What’s all the Hype?
Emily Glogowski, MSC, MS, LCGC, GeneDx
For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)