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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage Community Education Seminar: Connecticut

Saturday, May 11, 2019
Registration & Breakfast: 8:00-9:00 AM
Event: 9:00 AM-3:45 PM (lunch included)
Social Hour: 3:45-4:45 PM

Event Chair: Dr. Gyula Acsadi, Pediatric Neurologist, MDA Care Center Director, Connecticut Children’s Medical Center

Event Location: 
Red Lion Hotel
100 Berlin Rd.
Cromwell, CT  06416

There is no cost to attend the event, however, registration is required.

Registration has Closed

Agenda

  • Keynote Presentation – Clinical Trial Review
    • Dr. Gyula Acsadi, Pediatric Neurologist, MDA Care Center Director, Connecticut Children’s Medical Center
  • Mental Health Considerations
    • Lindsay Pratt-Bluemie, LCSW, Hospital for Special Care
  • Best Practices in Clinical Care
    • Dr. Cristian Ionita, Pediatric Neurologist & Director of Yale New Haven Children’s Hospital
  • Genetics and translational research in Neuromuscular Diseases
    • Monkol Lek, PhD., Yale School of Medicine; Lek Lab
  • A Different Hand to Play: A Guide for Parents of Children with Special Needs
    • Jacqueline Clark, CLTC., Long-Term Care Planning Professional
  • Home Accessibility & Safety
    • Cliff Bullock, Bullock Access
    • Amie Bullock, Bullock Access
  • MDA Spotlight
    • Jessica Davie, MDA

 

MDA Thanks our sponsors:

  • Sanofi Genzyme
  • AveXis

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)